scholarly journals Corrigendum to Quality of Communication Questionnaire for Patients Hospitalized in Intensive and Palliative Care Unit: Validity Evidence for Use in Brazil

2021 ◽  
pp. 104990912110476
Keyword(s):  
Palliative Care ◽  
Palliative Care Unit ◽  
Validity Evidence

scholarly journals Can a Good Death and Quality of Life Be Achieved for Patients with Terminal Cancer in a Palliative Care Unit?

2010 ◽  
Vol 13 (12) ◽  
pp. 1433-1438 ◽  
Author(s):  
Kai-Kuen Leung ◽  
Jaw-Shiun Tsai ◽  
Shao-Yi Cheng ◽  
Wen-Jing Liu ◽  
Tai-Yuan Chiu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Palliative Care Unit ◽  
Good Death ◽  
Terminal Cancer

scholarly journals Experience of temporary discharge from the inpatient palliative care unit: A nationwide post-bereavement survey for end-of-life cancer patients

2021 ◽  
Author(s):  
Go Sekimoto ◽  
Sakiko Aso ◽  
Naoko Hayashi ◽  
Keiko Tamura ◽  
Chieko Yamamoto ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Discharge Planning ◽  
Palliative Care Unit ◽  
The Family ◽  
Positive Experiences ◽  
Bereaved Family ◽  
Hospice And Palliative Care ◽  
Care Evaluation

Abstract Background: Some patients admitted to an inpatient palliative care unit (PCU), and who were discharged temporarily to home, later died at the PCU. The experiences of these patients and their families during temporary discharge are unclear.Methods: This study was part of a nationwide post-bereavement survey, the Japan Hospice and Palliative Care Evaluation 3 study. We sent questionnaires to the bereaved relatives of cancer patients who died in a PCU in 2018.Results: Of the 968 questionnaires sent, 571 (59%) were analyzed. Sixteen percent of the patients experienced temporary discharge from the PCU. Seventy-two percent of the bereaved family reported that the patients said, “I am happy to be discharged to home.” Between 22% and 37% of the patients reported an improvement in their condition after discharge. Family caregivers’ recognition of the better quality of the patient’s life at home and hospital doctors’ assurances of re-hospitalization whenever necessary, were significantly associated with positive experiences of temporary discharge.Conclusion: Bereaved family members recognized temporary discharge as a positive experience for both the patient and the family. Appropriate home palliative care and discharge planning contribute to positive experiences after discharge.

Quality of Life and Symptom Burden in Cancer Patients Admitted to An Acute Palliative Care Unit

2010 ◽  
Vol 26 (2) ◽  
pp. 94-102 ◽  
Author(s):  
Jennifer M. Jones ◽  
S. Robin Cohen ◽  
Camilla Zimmermann ◽  
Gary Rodin
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patients ◽  
Symptom Burden ◽  
Palliative Care Unit

A Survey of Bereaved Family Members To Assess Quality of Care on a Palliative Care Unit

2015 ◽  
Vol 18 (4) ◽  
pp. 358-365 ◽  
Author(s):  
Katherine A. Roza ◽  
Eric J. Lee ◽  
Diane E. Meier ◽  
Nathan E. Goldstein
Keyword(s):  
Palliative Care ◽  
Quality Of Care ◽  
Family Members ◽  
Palliative Care Unit ◽  
Assess Quality ◽  
Bereaved Family

scholarly journals Quantification of quality of life improvement after appropriate symptoms control in cancer patients with breakthrough pain: A four-week follow-up study in a palliative care unit

2019 ◽  
Vol 19 (4) ◽  
Author(s):  
Miguel Ángel Núñez Viejo ◽  
Carmen Areses Manrique ◽  
Leticia Iglesias Rey ◽  
Antonio Iglesias Rey ◽  
Antonio Javier Jiménez López ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patients ◽  
Breakthrough Pain ◽  
Palliative Care Unit ◽  
Follow Up Study ◽  
Life Improvement

scholarly journals Clown Care In A Palliative Care Unit: A Useful Paradox? A Preliminary Pilot Study Involving Questionnaires And Text Analysis.

2021 ◽  
Author(s):  
Laoridi Aouridi-Héritier ◽  
Sophie Alonzo ◽  
Pascale Fabbro-Peray ◽  
Marion Guinamard ◽  
Sylvie Blanchard ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Pilot Study ◽  
Physical Symptoms ◽  
Palliative Care Unit ◽  
Secondary Outcome ◽  
Secondary Outcome Measure ◽  
Life Questionnaire ◽  
The Impact

Abstract Title: The impact of Clown Therapy in a Palliative Care Unit (PCU); a pilot studyBackground: Although several studies on clown therapy have demonstrated benefits for children and the elderly, few studies exist on its impact on quality of life in adult terminal patients.We devised this monocentric, prospective, descriptive pilot study, covering both quantitative and qualitative aspects, to test the hypothesis that “clowning” in the PCU would help to improve the quality of life of patients, and benefit those accompanying them and their carers.Methods: 30 terminal patients [age range 63-79, 19 women, 11 men] from the palliative care unit at Nîmes University Hospital were included in the study from 31/03/2016 to 08/11/2016. All had given written informed consent. 2 clowns visited the patients and their companions, inviting them to take part in 15 to 30-minute improvised role-plays to prepare them for the inevitable separation. Primary outcome measures for the impact of the clowns’ interventions were: The Edmonton Symptom Assessment System evaluating patients’ physical symptoms and the McGill Quality of Life Questionnaire assessing patients’ quality of life. The secondary outcome measure was Alceste textual data analysis software to analyse semi-structured interviews held with patients, their companions and carers. Results: However long the clown’s intervention, the ESAS scores indicated a significant improvement in nausea (p=0.0248) and dyspnea (p=0.0476). Scores for depression (p=0.0160) also showed an improvement. A slight difference in the scores for anxiety (p=0.0900) and drowsiness (p=0.0812) was also observed. 2 days after the clowns’ intervention, the Mc Gill scores revealed a significantly greater physical quality of life (p=0.0044) and a very slight increase in the patients’ overall quality of life (p=0.0807). Results of the lexical analysis with Alceste revealed benefits for all those involved and gave an indication for better patient management at the PCU. Conclusions: This pilot study demonstrating the impact of “clowning” on various physical and mental symptoms in adult patients indicates the benefits of such interventions for patients, their companions and carers. Although the usefulness of clowns for children with life-threatening diseases is clear, the results obtained with our study clearly indicate the benefits of these interventions in adult, end-of-life patients. Further studies would be required to confirm these findings.Date of first registration : 20/11/2015Trial registration: ClinicalTrials.gov ID: NCT02610452This research was registered under the following reference : IDRCB 2015-A00719-40 and approved by the local committee for the protection of persons, CPP Sud-Méditerranée III-Nîmes on November 6th, 2015 under the reference 2015.06.03.

Prognostic factors, symptoms and consequences of dehydration and dyselectrolytemia in patients with terminal stomach cancer

2021 ◽  
Vol 27 (1) ◽  
pp. 46-52
Author(s):  
Paweł Bryniarski ◽  
Magdalena Bryniarska ◽  
Maciej Jezioro ◽  
Daniel Andrysiak ◽  
Iwona Filipczak-Bryniarska
Keyword(s):  
Palliative Care ◽  
Stomach Cancer ◽  
Clinical Symptoms ◽  
Sodium Concentration ◽  
Albumin Level ◽  
Palliative Care Unit ◽  
Duration Of Treatment ◽  
High Sodium ◽  
Ps Scale

Background: Dyselectrolytaemia and dehydration are common symptoms in people with terminal stomach cancer. Aims: To determine factors related to dyselectrolytemia and dehydration in patients with terminal stomach cancer. Methods: An analysis of 134 patients with terminal stomach cancer admitted to the palliative care unit was conducted, through an audit of the patients' medical records. The average age of women was 63.1 years and that of men was 64.9 years. Findings: Dehydrated patients were more likely to: have dyselectrolytaemia; have a higher PS scale score; be taking opioids as an analgesic; have a high sodium concentration; experience dyspnoea, constipation, nausea and vomiting during hospitalisation; and require glucocorticoids administration both during and before hospitalisation. Patients with dyselectrolytaemia were more likely to: be admitted to the palliative care unit from the emergency department; experience cachexia and dehydration during hospitalisation and constipation at discharge; have a lower albumin level; and have a higher glucose level. Patients with dyselectrolytaemia also had a shorter duration of treatment and a 2.48 greater chance for death compared with those who did not have it. Conclusions: Knowledge of the adverse factors connected with dehydration and dyselectrolytaemia will allow health professionals to avoid dangerous clinical symptoms and prolong the life of those with terminal stomach cancer, as they might be able to foresee the occurrence of these conditions based on the medication the patient has been taking and symptoms they have been experiencing. Nurses will have a greater understanding of the importance of fluid therapy to resolve ionic disturbances and the need to address dehydration and dyselectrolytemia as a means to prolong and improve quality of life.

Effect of Antibiotics on Patients’ Quality of Life in a Palliative Care Unit of a Tertiary Teaching Hospital

2016 ◽  
Vol 6 (1) ◽  
pp. 20-25
Author(s):  
Jung-Won Kim ◽  
Youn Seon Choi ◽  
Jung-Eun Kim ◽  
E Yeon-Kim ◽  
Seon-Mee Kim ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Teaching Hospital ◽  
Palliative Care Unit ◽  
Tertiary Teaching ◽  
Tertiary Teaching Hospital

Evaluating the cost-effectiveness of the hospital-based palliative care program at The Johns Hopkins Hospital.

2016 ◽  
Vol 34 (7_suppl) ◽  
pp. 23-23
Author(s):  
Sarina Isenberg ◽  
David R Holtgrave ◽  
Chunhua Lu ◽  
John P McQuade ◽  
Brian Weir ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cost Effectiveness ◽  
Cost Effective ◽  
Cost Of Care ◽  
Palliative Care Unit ◽  
Hospital Perspective ◽  
Life Years ◽  
The Cost

23 Background: The objectives of the study were to determine whether a Palliative Care Unit (PCU) provides benefits not just from a cost perspective, but from a patient and caregiver quality of life (QOL) perspective. Methods: (1) Calculate the total costs of the PCU; (2) Leverage a threshold analysis to estimate the Quality-Adjusted Life Years (QALYs) required for the PCU to be cost effective; and (3) Determine whether it is feasible for the program to yield the required number of QALYs. Setting was the Johns Hopkins Health System Palliative Care Unit (PCU) in Baltimore, MD. Analysis was based on patient volume from March 2013-2014. Results: There were 209 palliative patients. The costs for the societal perspective was $2,044,364 and the required number of QALYs to deem it cost effective were 11.36. The net costs for the hospital perspective was $625,777 (gross cost was $993,528; however, the program generated $367,751 in savings for the hospital through treating patients in the PCU as opposed to other functional units), and the required number of QALYs to deem it cost effective were 3.48. To determine whether the program is able to achieve the number of QALYs required, the study team generated aggregated QALYs based on other studies’ evidence for palliative care’s improvement of quality of life for patients and their caregivers. Combining the QALYs generated from the aggregated calculations for patients (0.12) and caregivers (4.60), the program had the potential to yield a total of 4.73 QALYs. Conclusions: This analysis suggests that the PCU is cost effective from the hospital perspective in the sense that the benefits it provides to patients’ and caregivers’ quality of life outweighs the cost of care. Future studies should continue to evaluate palliative care from a cost effectiveness perspective that incorporates a consideration of the quality of life improvements, rather than just cost-reduction.

Snapshot of an acute palliative care unit in a tertiary cancer hospital

2013 ◽  
Vol 12 (4) ◽  
pp. 331-337 ◽  
Author(s):  
Akhila Reddy ◽  
Marieberta Vidal ◽  
Maxine de la Cruz ◽  
Sriram Yennurajalingam ◽  
Eduardo Bruera
Keyword(s):  
Palliative Care ◽  
The United States ◽  
Palliative Care Unit ◽  
Psychosocial Issues ◽  
Special Report ◽  
Working Together ◽  
Consultation Services ◽  
Specialized Unit

AbstractMost palliative care (PC) programs in the United States provide consultation services that assist the primary medical team with issues ranging from controlling patients' symptoms to initiating end-of-life discussions. This approach may be sufficient to address many patients' needs. However, for certain patients with complex medical and psychosocial issues, a better alternative is a more streamlined approach that can be provided in an acute palliative care unit (APCU), where the PC staff assumes the role of the primary team. An APCU is a specialized unit that delivers highly sophisticated care with professionals from various disciplines working together to improve the quality of life of patients and their families. However, descriptions of the process of delivering PC in the APCU are limited. In this special report, we portray a single day with a series of patients whose care was managed at our APCU to illustrate the unique components of an APCU that allow holistic care for patients with multiple complex medical and psychosocial issues.

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