scholarly journals The family's experience of the child and/or teenager in palliative care: fluctuating between hope and hopelessness in a world changed by losses

2015 ◽  
Vol 23 (3) ◽  
pp. 560-567 ◽  
Author(s):  
Maira Deguer Misko ◽  
Maiara Rodrigues dos Santos ◽  
Carolliny Rossi de Faria Ichikawa ◽  
Regina Aparecida Garcia de Lima ◽  
Regina Szylit Bousso
Keyword(s):  
Palliative Care ◽  
Comparative Analysis ◽  
Theoretical Model ◽  
Symbolic Interactionism ◽  
Medical Condition ◽  
Spiritual Beliefs ◽  
Substantive Theory ◽  
The Family ◽  
Determining Factors ◽  
Child's Death

OBJECTIVES: to understand the family's experience of the child and/or teenager in palliative care and building a representative theoretical model of the process experienced by the family.METHODOLOGY: for this purpose the Symbolic Interactionism and the Theory Based on Data were used. Fifteen families with kids and/or teenagers in palliative care were interviewed, and data were collected through semi-structured interviews.RESULTS: after the comparative analysis of the data, a substantive theory was formed "fluctuating between hope and hopelessness in a world changed by losses", composed by: "having a life shattered ", "managing the new condition", "recognizing the palliative care" and "relearning how to live". Hope, perseverance and spiritual beliefs are determining factors for the family to continue fighting for the life of their child in a context of uncertainty, anguish and suffering, due to the medical condition of the child. Along the way, the family redefines values and integrates palliative care in their lives.CONCLUSION: staying with the child at home is what was set and kept hope of dreaming about the recovery and support of the child's life, but above all, what takes it away even though temporarily is the possibility of their child's death when staying within the context of the family.

scholarly journals Family composing the soundtrack of its reintegration: a theoretical model

2018 ◽  
Vol 71 (suppl 3) ◽  
pp. 1298-1305
Author(s):  
Ana Paula Cascarani Faria ◽  
Circéa Amália Ribeiro ◽  
Ana Lucia de Moraes Horta
Keyword(s):  
Grounded Theory ◽  
Comparative Analysis ◽  
Theoretical Model ◽  
Data Collection ◽  
Qualitative Study ◽  
Health Professional ◽  
Participant Observation ◽  
Theoretical Framework ◽  
Main Category ◽  
The Family

ABSTRACT Objective: to understand the meaning of the family's reintegration attributed by the family experiencing it and to construct a representative theoretical model of this experience. Method: this is a qualitative study, conducted with four families with a total of 20 interviewees, with Symbolic Interactionism as theoretical framework, Grounded Theory as methodological, participant observation and the experience of musical making, mediating the interview as strategies of data collection. Results: a comparative analysis of the data led to the identification of the main category and to the construction of the theoretical model TRYING TO REBUILD WHAT WAS BROKEN. Conclusion: the family experiencing reintegration lives a process of reconstruction that allows to revisit situations of abandonment and review the behavior of caring and re-meaning of family coexistence. For the health professional, this study invites to think about this theme and to review the concept of family, in order to create their own sense of care.

scholarly journals Independence of children with Down syndrome: the experiences of families

2011 ◽  
Vol 19 (4) ◽  
pp. 985-993 ◽  
Author(s):  
Michelle Darezzo Rodrigues Nunes ◽  
Giselle Dupas
Keyword(s):  
Down Syndrome ◽  
Grounded Theory ◽  
Theoretical Model ◽  
Symbolic Interactionism ◽  
Care Delivery ◽  
School Age ◽  
Structured Interviews ◽  
Children With Down Syndrome ◽  
The Family ◽  
The Future

This study develops a theoretical model concerning the experience of families of children with Down syndrome in preschool and school age. The frameworks used were Symbolic Interactionism and Grounded Theory. Semi-structured interviews were used as the instrument of investigation and ten families participated in the study. The Theoretical Model "Seeking the child's independence and autonomy through constant stimulation" was identified, which shows the family's efforts to enable the child to develop the best s/he can through stimulation in order to become less dependent in the future. This model can be used to facilitate interaction with the family and can be further expanded. Nurses should use spaces dedicated to care delivery to establish bonds with the family, and seek other spaces families frequent, to better meet their needs, since there are significant gaps in care and research addressing this population. Instead, they should be welcomed and seen as a partner in care delivery.

COMPARATIVE ANALYSIS OF MORPHOLOGICAL-ANATOMICAL FEATURES OF THE LEAVES STRUCTURE OF REPRESENTATIVES OF THE FAMILY LAURACEAE

Fitoterapia ◽  
2019 ◽  
Vol 4 (4) ◽  
pp. 46-50
Author(s):  
I. Yu. Posochova ◽  
◽  
O. P. Khvorost ◽  
Yu. A. Fedchenkova ◽  
◽  
...  
Keyword(s):  
Comparative Analysis ◽  
Anatomical Features ◽  
The Family

A comparative analysis of financial awareness of the Northwestern Federal District population

2020 ◽  
Vol 18 (3) ◽  
pp. 474-491
Author(s):  
G.V. Belekhova
Keyword(s):  
Comparative Analysis ◽  
Financial Literacy ◽  
Federal District ◽  
Population Based ◽  
District Population ◽  
The Family ◽  
The Russian Federation ◽  
Ministry Of Finance ◽  
Financial Awareness ◽  
Competence System

Subject This article deals with the issues of determining the level of financial literacy, identifying problems, and comparing the financial literacy rates of the population of different areas. Objectives The article aims to identify territorial differences in the overall level of financial literacy of the population of the Northwestern Federal District regions and study the prevalence of problems related to the family budget, using financial products, and risk. Methods For the study, we used a sociological survey and an original methodology for indexing the level of financial literacy of the population based on the methodology of the Organization for Economic Cooperation and Development, taking into account the adults' financial competence system proposed by the Ministry of Finance of the Russian Federation. Results The article determines the level of financial literacy of the Northwestern Federal District population and identifies similar problems for the District's regions. Conclusions A comparative analysis of the components of financial literacy of the four regions reveals the strengths and weaknesses of each of them. This will help adjust financial literacy programmes being implemented in some regions and developed in others.

scholarly journals “It’s Always Been a Second Class Cancer”: An Exploration of the Experiences and Journeys of Bereaved Family Carers of People with Sarcoma

Cancers ◽  
2021 ◽  
Vol 13 (11) ◽  
pp. 2670
Author(s):  
Moira O’Connor ◽  
Greta Smith ◽  
Ashleigh Pantaleo ◽  
Darren Haywood ◽  
Rhys Weaver ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Member ◽  
The Body ◽  
Social Constructionist ◽  
Family Carers ◽  
Writing Therapy ◽  
The Family ◽  
Qualitative Descriptive ◽  
Bereaved Family ◽  
Delays In Diagnosis

Sarcomas are a group of rare and aggressive cancers, which develop in bones and connective tissue throughout the body. Sarcomas account for only 1–2% of all cancers worldwide; however, mortality rates for sarcoma are high with approximately two in four sarcoma patients dying following a diagnosis. Delays in diagnosis, poor management of symptoms, patients’ high symptom loads and high carer burden are all associated with carer distress, which may lead to complications after bereavement. The experience of having a family member referred for palliative care is also distressing for carers, with the realisation that their family member is dying. This study aimed to explore the experiences of bereaved family carers of people diagnosed with sarcoma. A qualitative descriptive design using a social constructionist framework was adopted. Interviews were conducted with sixteen participants, and thematic analysis was used to identify patterns in the data. Four overarching themes emerged: beginning the journey; moving through treatment; transitioning to palliative care; and experiencing bereavement. The narratives were coherent and potent, and people reflected on their journeys. Interventions and supports for bereaved carers could include opportunities for counselling to support reflections, supports for developing a narrative such as writing therapy, and preparation for the death of the family member.

scholarly journals Palliative care in paediatric oncology: perceptions, expertise and practices from the perspective of the multidisciplinary team

2015 ◽  
Vol 36 (2) ◽  
pp. 56-62 ◽  
Author(s):  
Adriana Ferreira da Silva ◽  
Helena Becker Issi ◽  
Maria da Graça Corso da Motta ◽  
Daisy Zanchi de Abreu Botene
Keyword(s):  
Palliative Care ◽  
Multidisciplinary Team ◽  
Structured Interview ◽  
Paediatric Oncology ◽  
Lessons Learned ◽  
Team Members ◽  
Descriptive Research ◽  
The Family ◽  
Research Questions ◽  
Oncology Unit

OBJECTIVE: To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD: Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS: The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS: The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the child's care.

Synchrony and diachrony of postverbal negation in Jodï-Sáliban

2021 ◽  
Author(s):  
Jorge Emilio Rosés Labrada
Keyword(s):  
Comparative Analysis ◽  
South America ◽  
Language Family ◽  
Depth Analysis ◽  
The Family ◽  
Comparative Treatment

Abstract This article proposes a detailed comparative treatment of negation in the Jodï-Sáliban language family (Venezuela-Colombia, Northwest Amazonia, South America), which consists of four languages: Jodï [yau], Sáliba [slc], Piaroa [pid] and Mako [wpc]. This comparative analysis of negation strategies across the four languages in the family not only offers an overview of negation strategies in this language family but also allows for conclusions to be drawn on the cognacy of the different constructions and markers as well as on the sources of the main negation strategies. Specifically, I show that, even though certain markers are not cognate, negation in these languages has – as far back as the documentation goes – always been postverbal and suggest that postverbal negation can be diachronically stable. This research thus offers an in-depth analysis of negation in Jodï-Sáliban, a language family that remains underdescribed, and, crucially, contributes to our understanding of postverbal negation and its sources.

scholarly journals Avoidant Coping of the Decision-Making Process on the Location of Care in Old Age: A Possible Conspiracy of Silence?

2021 ◽  
Vol 18 (24) ◽  
pp. 12940
Author(s):  
Gema Serrano-Gemes ◽  
Isabel Gil ◽  
Adriana Coelho ◽  
Rafael Serrano-del-Rosal
Keyword(s):  
Decision Making ◽  
Palliative Care ◽  
Comparative Analysis ◽  
Old Age ◽  
Qualitative Interviews ◽  
Avoidant Coping ◽  
Decision Making Process ◽  
Older Person ◽  
High Incidence ◽  
Conspiracy Of Silence

The conspiracy of silence is extremely important due to both its high incidence and its consequences. This process usually occurs in situations of palliative care, or death; however, this concept is also mentioned in the literature linked to other contexts. Therefore, our objective was to study whether the conspiracy of silence may be extrapolated to the context of decision-making on the location of care in old age. To this end, we first analyzed the in-depth semi structured qualitative interviews conducted with older people, caregivers, and professionals, about decision-making on the location of care in old age. Subsequently, a comparative analysis was performed between the basic elements of the conspiracy of silence and this decision-making. Our findings revealed an avoidance process developed by all three groups. Furthermore, this decision-making presents similarities with the conspiracy of silence in the process of avoidance coping and denial that is developed. However, there are significant differences, as information is not withheld from the older person, who has an active attitude in the process of avoidance. Decision-making on the location of care in old age does not exactly match the conspiracy of silence process, but it does seem to correspond to a pact of silence.

scholarly journals Notes on the nature of avant-garde and constructivism

2020 ◽  
pp. 106-119
Author(s):  
Vadim Markovich Rozin
Keyword(s):  
Comparative Analysis ◽  
Avant Garde ◽  
Analysis Methods ◽  
Figurative Art ◽  
The Family ◽  
Methods Of Reconstruction ◽  
Applied Arts

Based on the materials of the family of architects Zimonenko-Feierstein, this article examines the peculiarities of avant-garde and constructivism. Roman Feierstein and Lyubov Zimonenko graduated the Moscow University of Arctitecture and were taught by pedagogues – the representative of avant-garde and constructivism. To understand the nature of avant-garde and constructivism, the author characterizes the goals and tasks solved by these trends and concepts, as well as analyzes the works of Roman Feierstein and Lyubov Zimonenko. It is demonstrated that constructivists create artistic reality, juxtaposing and simultaneously combining various processes and contents, sending over consciousness of a spectator to a particular reality. This pattern is inherent not only to figurative art, but also literature. The article employs situational and comparative analysis, methods of reconstruction of the works of applied arts and generalization. As a result, the author was able to reveal certain peculiarities of avant-garde and constructivism as an approach and activity, as well as underline that avant-garde and constructivism as approaches also suggest conceptualism. The role of conceptualism consists in outlining and explaining of reality, created by an artist for their audience.

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