scholarly journals HEALTH-RELATED QUALITY OF LIFE OF PATIENTS WITH PERMANENT CARDIAC PACING

2020 ◽  
Vol 29 ◽  
Author(s):  
Sumaya dos Santos Gonçalo ◽  
Elisa Maia de Oliveira Grotti ◽  
Rejane Kiyomi Furuia ◽  
Rosana Aparecida Spadoti Dantas ◽  
Lídia Aparecida Rossi ◽  
...  

ABSTRACT Objective: to assess the health-related quality of life of patients with a permanent cardiac pacemaker. Method: descriptive, observational, cross-sectional study conducted in the arrhythmia outpatient unit of a university hospital located in the interior of São Paulo, Brazil. The consecutive and non-probabilistic sample was composed of both sexes, older than 29 years old, having a pacemaker for at least one month. Those lacking the cognitive condition to answer the questionnaires, as well as those with dyspnea, weakness, or fatigue at the time the instruments were applied, or with an implantable cardioverter defibrillator, were excluded. The generic instrument Medical Outcomes Study 36 - Item Short-Form Health Survey, composed of 36 questions distributed into eight domains along with the specific instrument Assessment of Quality of Life and Related Events, composed of 20 questions distributed into three domains, were used to assess health-related quality of life. Results: 88 patients participated; most were men, had a partner, and were aged 64.3 (±13) years old on average. The domains from the Medical Outcomes Study 36 that obtained the highest means, that is, were the best-rated, were Social Functioning (78.1; ±26.8) and Emotional Well-Being (68.2; ±23.9), while the lowest means were obtained by Physical Health (48.2; ±41.4) and Physical Functioning (58.5; ±27.9). In regard to the Assessment of Quality of Life and Related Events, the Arrhythmia domain had the highest mean and best quality of life (78.2; ±20.7), while the lowest mean was Dyspnea (71.1; ±26.8). Conclusion: the patients gave the highest health-related quality of life ratings in regard to mental domains and the lowest ratings for the physical domains.

2019 ◽  
Vol 3 (Supplement_1) ◽  
Author(s):  
Elvira Estorninos ◽  
Rachel Lawenko ◽  
Katherine Buluran ◽  
Yipu Chen ◽  
Jowena Lebumfacil ◽  
...  

Abstract Objectives Health-related quality of life (QoL) is an important component of overall wellbeing. The study aimed to describe the parent-perceived infant quality of life of exclusively breastfed infants along with their mother's physical and mental health in a Filipino cohort. Methods Healthy term infants, who were exclusively breastfed since birth and whose mothers had decided to exclusively breastfeed until 6 months (m) of age, were enrolled at 21–26 days of age from a single center in the Philippines. Parents completed the Infant Toddler Quality of Life Questionnaire (ITQoL) and the Short Form Health Survey (SF-36v2) (assessing maternal QoL) at enrollment and when infants were 2.5 m, 4 m, and 6 m of age. Infants’ anthropometrics were measured and parents completed gastrointestinal (GI) diaries and Infant Gastrointestinal Symptoms Questionnaire (IGSQ) throughout the study. Results Among 75 enrolled infants, 70 completed the study at age 6 m. Infant QoL mean scores were high throughout the study (range 0–100 for each concept; Table 1). Nonetheless, noticeable improvements were observed between enrollment and 2.5 m, especially in the infant-focused concept of Temperament and Moods as well as in all three parent-focused concepts (Emotional, Time, and Family Cohesion) which measure impact of child's health on parents. Between 2.5 and 6 m, the scores remained relatively stable. For maternal QoL mean scores (scores standardized to Mean = 50, SD = 10 for each scale; Table 1), noticeable improvements were observed between enrollment and 2.5 m, with Physical Health showing more pronounced improvements. The Role-Emotional scale, which measures role limitations due to emotional problems, showed the lowest scores. From enrollment to age 6 m, mean z-scores for weight-for-age, length-for-age and head circumference-for-age stably tracked WHO Growth Standards. Additionally, infant stool consistency became more formed, and incidences of spitting up/vomiting and flatulence decreased. The overall GI burden also decreased (IGSQ index score: range 13–65; 15.8 ± 3.2 at enrollment and 14.0 ± 1.2 at 6 m). Conclusions In a cohort of exclusively breastfed Filipino mother-infant dyads, parent-perceived infant health-related quality of life was high and comparable to that reported in literature1. Maternal quality of life, particularly their perceived state of emotional well-being, warrants further investigation. Funding Sources Nestec Ltd. Supporting Tables, Images and/or Graphs


2009 ◽  
Vol 27 (28) ◽  
pp. 4664-4670 ◽  
Author(s):  
Robert S. Krouse ◽  
Lisa J. Herrinton ◽  
Marcia Grant ◽  
Christopher S. Wendel ◽  
Sylvan B. Green ◽  
...  

Purpose Intestinal stomas can pose significant challenges for long-term (≥ 5 years) rectal cancer (RC) survivors. Specifying common challenges and sociodemographic or clinical differences will further the development of tailored interventions to improve health-related quality of life (HRQOL). Patients and Methods This was a matched cross-sectional study of long-term RC survivors conducted in three Kaiser Permanente regions. The mailed questionnaire included the modified City of Hope Quality of Life-Ostomy (mCOH-QOL-Ostomy) and Medical Outcomes Study 36-Item Short-Form Health Survey, version 2 (SF-36v2). Groups surveyed were permanent ostomates (cases) and those who did not require an ostomy (controls). RC survivors were matched on sex, age, and time since diagnosis. Comparisons between groups used regression analysis with adjustment for age, comorbidity score, history of radiation therapy, income, and work status. Results Response rate was 54% (491 of 909). Cases and controls had similar demographic characteristics. On the basis of the mCOH-QOL-Ostomy, both male and female cases had significantly worse social well-being compared with controls, while only female cases reported significantly worse overall HRQOL and psychological well-being. For younger females (< age 75 years), ostomy had a greater impact on physical well-being compared with older females. Based on the SF-36v2, statistically significant and meaningful differences between female cases and controls were observed for seven of the eight scales and on the physical and mental component summary scores. Conclusion Men and women report a different profile of challenges, suggesting the need for targeted or sex-specific interventions to improve HRQOL in this population. This may include focus on physical HRQOL for female ostomy survivors younger than age 75.


Blood ◽  
2002 ◽  
Vol 99 (6) ◽  
pp. 1995-2001 ◽  
Author(s):  
Mina Nishimori ◽  
Yoshitsugu Yamada ◽  
Keiko Hoshi ◽  
Yuichi Akiyama ◽  
Yasutaka Hoshi ◽  
...  

Abstract To promote bone marrow donation, both the safety and well-being of healthy unrelated volunteer donors must be protected. This prospective cohort study evaluated donors' health-related quality of life (HRQOL) and identified factors associated with it. Using the Medical Outcomes Study Short Form 36 Health Survey (SF-36) before bone marrow harvesting (BMH), and again 1 week and 3 months after the donors' discharge, we evaluated HRQOL of 565 donors (329 men, 236 women) registered with the Japan Marrow Donor Program (JMDP). We also examined the data routinely collected by the JMDP, such as BMH-related problems and other demographic and medical variables, to determine whether such data could be used to predict donors' HRQOL after discharge. Mean scores of all pre-BMH SF-36 subscales showed better functioning than the national norm. One week after discharge, mean scores on physical functioning (PF) and role-physical (RP) subscales, indicative of physical states, and bodily pain (BP) were approximately 1 SD lower than the national norm; however, mental health (MH) and general health perception (GH) remained above normal; the most frequent BMH-related problems were pain at the donation site and lower back pain, which were associated with lower PF, RP, and BP scores. Female gender and duration of procedure predicted lower PF, RP, and BP. Three months after discharge, mean scores of all SF-36 subscales had returned to baseline levels. These data show that the adverse effects of BMH on donors' HRQOL are transient and can be minimized by better management of pain.


2011 ◽  
Vol 16 (esp) ◽  
Author(s):  
Andréa Kruger Gonçalves ◽  
Adriane Ribeiro Teixeira ◽  
Cíntia De la Rocha Freitas ◽  
Eliane Jost Blessmann ◽  
Laysla Roedel ◽  
...  

A qualidade de vida relacionada à saúde-HRQL possui um caráter multidimensional com integração da saúde física, do bem-estar psicológico e da satisfação social. O objetivo foi avaliar a qualidade de vida relacionada à saúde (HRQL) de participantes de meia-idade e de idosos de um projeto de atividade física regular. O tipo de estudo foi descritivo, com corte transversal, sendo que a amostra foi composta por 40 adultos com idade entre 50 e 80 anos, integrantes do CELARI da ESEF/UFRGS. O instrumento utilizado foi o SF-36 e a análise empregada utilizou a estatística descritiva e o teste de correlação de Pearson. A pontuação dos domínios por ordem decrescente foi: AS, AF, AE, EGS, CF, SM, VIT, DOR. Houve correlação positiva significativa entre a maioria dos domínios do SF-36. As correlações não significativas ocorreram entre EGS x AS, SM x AF. A idade apenas correlacionou-se com o domínio EGS. A HRQL da amostra mostrou-se com valores superiores, ao ser comparada com a de outros estudos. Os valores atingiram no mínimo 70% de pontuação, na média dos domínios. Os resultados indicaram um nível satisfatório de HRQL e relação entre os domínios do SF-36. palavras-chave Envelhecimento. Qualidade de Vida. Atividade Física. Saúde. abstract The health-related quality of life – HRQOL is a multidimensional issue with integration of physical health, psychological well-being and social satisfaction factors. The aim of this study was to evaluate the health-related quality of life – HRQOL in ageing people who practice regular physical activity. This study was a descriptive cross-sectional and  the sample included 40 adults, aged between 50 and 80 years, attending a University Extension Program. The instrument used was the Brazilian version of Short Form-36. Descriptive statistical analysis was used to summarize HRQL data and Pearson’s correlation for comparison between domains. The score of the domains in descending order were: AS, AF, AE, EGS, CF, SM, VIT, DOR. There was a significant positive correlation between the majority of SF-36. The correlations were not significant between EGS x AS, SM x AF. The age was correlated only with the EGS field. The HRQL of the sample proved to be higher, when compared with other studies. The values ​​reached a minimum score of 70% in average scores. The results indicated a satisfactory level of HRQOL and a significant relationship between different aspects of health-related quality of life. keywords Aging. Quality of Life. Physical Activity. Health.


2009 ◽  
Vol 17 (1) ◽  
pp. 101-107 ◽  
Author(s):  
Claudia Maria Monteiro ◽  
Maria Cecília Cardoso Benatti ◽  
Roberta Cunha Matheus Rodrigues

This study analyzed the occurrence of occupational accidents among hospital workers between 2000 and 2005 and health-related quality of life of a sample of injured workers in 2005. Data obtained through occupational accident reports indicated 286 injured workers. In typical accidents (91.6%), accidents with piercing-cutting instruments affected 68.5% of workers. The results related to health-related quality of life obtained from 61 injured workers in 2005, through the SF-36 Medical Outcomes Study 36 - item short form health survey, evidenced high average values in most of the analyzed domains, while the lowest score observed was Vitality and Bodily Pain. No significant differences in health-related quality of life were found among injured workers from the three studied hospitals.


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