scholarly journals Democracy in a Pandemic: Participation in Response to Crisis

2021 ◽  

Covid-19 has highlighted limitations in our democratic politics – but also lessons for how to deepen our democracy and more effectively respond to future crises. In the face of an emergency, the working assumption all too often is that only a centralised, top-down response is possible. This book exposes the weakness of this assumption, making the case for deeper participation and deliberation in times of crises. During the pandemic, mutual aid and self-help groups have realised unmet needs. And forward-thinking organisations have shown that listening to and working with diverse social groups leads to more inclusive outcomes. Participation and deliberation are not just possible in an emergency. They are valuable, perhaps even indispensable. This book draws together a diverse range of voices of activists, practitioners, policy makers, researchers and writers. Together they make visible the critical role played by participation and deliberation during the pandemic and make the case for enhanced engagement during and beyond emergency contexts. Another, more democratic world can be realised in the face of a crisis. The contributors to this book offer us meaningful insights into what this could look like.

2020 ◽  
Vol 6 (4) ◽  
Author(s):  
Oksana Tymoshchuk ◽  
Teresa Sousa ◽  
Ana Margarida Almeida ◽  
Paula Santos

This article discusses the development of an e-moderation model for an online community in Special Education, whose objective is a more accessible communication between families and education and health professionals. The study used a development research methodology, which involved several complementary steps, including the analysis of existing e-moderation models and interviews with moderators of self-help groups in the area of Special Needs. The proposed e-moderation model presents a convergent approach to existing theoretical models and the practices and dynamics of mutual aid groups in the area of Special Needs. The development of this model has enabled the creation of an online community named Compartilha, that aims to promote the sharing of knowledge and resources among these education agents of children and young people with Special Needs. Este artigo aborda o desenvolvimento de um modelo de e-moderação para uma comunidade online em Educação Especial, cujo objetivo é uma comunicação mais acessível entre famílias e profissionais de educação e saúde. O estudo utilizou uma metodologia de investigação de desenvolvimento, que envolveu várias etapas complementares, incluindo a análise dos modelos de e-moderação existentes e entrevistas com moderadores de grupos de autoajuda na área das Necessidades Especiais. O modelo de e-moderação proposto apresenta uma abordagem convergente dos modelos teóricos existentes e das práticas e dinâmicas dos grupos de ajuda mútua no domínio das necessidades especiais. O desenvolvimento deste modelo permitiu a criação de uma comunidade online denominada Compartilha, que visa promover a partilha de conhecimentos e recursos entre estes agentes educativos de crianças e jovens com necessidades especiais. <p> </p><p><strong> Article visualizations:</strong></p><p><img src="/-counters-/edu_01/0770/a.php" alt="Hit counter" /></p>


2019 ◽  
pp. 91-113
Author(s):  
Nora Gotaas

The chapter discusses collaborations and «borderwork» between self-help/mutual aid activists and professionals by the example of the project Utviklingsprosjekt LINK Vestfold. The project was initiated and run by three patient education resource centres (LMS) in Vestfold county in 2009–2010, financially supported by the Directorate of Health and in close collaboration with the National Competence Centre Self-Help Norway. Essentially, the project was very successful, resulting in a broad and active network of professionals and volunteers and the formation of new self-help groups. The project paved the way for a new district office of the National Competence Centre. At the same time, the collaboration revealed certain tensions and ambiguities on both sides, originating in close similarities as well as important differences regarding the use and practice of experiential knowledge – as opposed to professional knowledge – by actors operating in between and on the fringe of established fields. The project highlights how processes of standardization of the self-help model (by Self-Help Norway) is met by kind of resistance and how self-help as a «boundary object» needs to be kept flexible to adjust to different local contexts. This may be an act of balance in a context where the self-help movement is the weaker part regarding institutional strength, in need of guarding the autonomy of self-help groups.


2020 ◽  
Vol 19 (2) ◽  
pp. 560-590
Author(s):  
Claudia Bernabéu-Álvarez ◽  
Mar Faus-Sanoguera ◽  
Marta Lima-Serrano ◽  
Joaquín-Salvador Lima-Rodríguez

Introducción: Desde la incorporación de la mujer al mundo laboral, junto con el envejecimiento progresivo de la población y el aumento de las enfermedades crónicas, se produce una alteración en el rol del cuidador, debido a la carga física, laboral y familiar que soporta, generándose conflictos emocionales y con el resto de miembros de la familia. La ayuda mutua puede ser una alternativa eficaz para promover el bienestar de los cuidadores, así como el de sus familias y dependientes.Objetivo: Conocer las características de los grupos de ayuda mutua (GAM) para cuidadores familiares y su influencia sobre los cuidadores, la persona dependiente y la salud familiar.Metodología: Revisión sistemática. La estrategia de búsqueda incluyó las bases de datos Pubmed, Scopus, Psycinfo, Eric, Cochrane plus y CSIC. Se buscaron artículos escritos en español, catalán, inglés, portugués o francés, publicados en los últimos 10 años.Resultados: Se seleccionaron 12 artículos relacionados con el tema de estudio. Todos los estudios muestran que la participación en estos grupos puede mejorar el bienestar físico-psicológico, el estado de salud de los cuidadores y, al mismo tiempo, reforzar su sentimiento de apoyo social, aunque faltan estudios en nuestro medio, con un tamaño muestral superior y de mayor calidad.Conclusiones: Los cuidadores se benefician de participar en grupos de ayuda mutua. Por lo tanto, deben convertirse en un componente de rutina del cuidador familiar. Introduction: Since the incorporation of women into the world of work, together with the progressive ageing of the population and the increase of chronic diseases, there is an alteration in the role of the caregiver, due to the physical, work and family burden it bears, emotional conflicts and with other family members. Mutual aid can be an effective alternative to promoting the well-being of caregivers, as well as their families and dependents.Objective: To know the characteristics of self-help groups for family caregivers and their influence on caregivers, the dependent and family health.Methodology: Systematic review. The search strategy included the Pubmed, Scopus, Psycinfo, Eric, Cochrane plus and CSIC databases; selecting scientific articles in either Spanish, Catalan, English, Portuguese or French, for the last 10 years.Results: 12 articles related to the study topic were selected. All studies show that participation in these groups can improve the physical-psychological well-being, the health of caregivers and, at the same time, reinforce their sense of social support, although there is a lack of studies in our environment, with a size higher quality sample.Conclusions: Caregivers benefit from participating in self-help groups. Therefore, they should become a routine component of the family caregiver.


2021 ◽  
Vol 9 (10) ◽  
pp. 1319-1322
Author(s):  
Raghu B.T ◽  
◽  
Venkatesha T.K ◽  

Self-help groups also known as mutual help, mutual aid, or support groups, or groups of people who provide mutual support for each other. In a self-help group, the members share a common problem, often a common disease or addiction. Their mutual goal is to help each other to deal with, if possible to heal or to recover from, this problem. In traditional society, family and friends provided social support. In modern industrial society, however, family and community ties are often disrupted due to mobility and other social changes. Thus, people often choose to join with others who share mutual interests and concerns.


Focaal ◽  
2021 ◽  
pp. 1-14
Author(s):  
Celia Plender

Self-help and mutual aid have been at the heart of the consumer cooperative movement and its response to food insecurity since its inception. Yet how these terms are conceptualized and practiced in contemporary food co-ops often has more to do with their individual histories, ideologies, and the values of those involved than it does the history of the cooperative movement. Drawing on ethnographic examples from two London-based food co-ops with different backgrounds, this article explores how each enacts ideals of aid and exchange. It argues that the context of austerity creates “awkwardnesses” between and within personal values and organizational structures in the face of inequality, leading to blurred boundaries between different models of aid and exchange and the forms of moral accounting that these entail.


1993 ◽  
Vol 12 (1) ◽  
pp. 211-223 ◽  
Author(s):  
Rubin Todres ◽  
Stephen Hagarty

This paper reports on an evaluation of the Self-Help Clearinghouse of Metropolitan Toronto. The purpose of the Clearinghouse is to facilitate the growth and development of self-help/mutual aid groups, and to inform and educate both the Metropolitan Toronto professional helping community and the larger community of the nature and availability of self-help. This study included: (a) a pre- and post-test assessment of awareness, knowledge, and utilization of the Clearinghouse's services and (b) a descriptive assessment of the perceived value of the Clearinghouse from the perspective of a range of informants. Study information was collected from: (a) a selection of representatives of Metro Toronto self-help groups (pre-test N = 70 and post-test N = 52) and (b) a selection of representatives of Metro Toronto health and social services agencies (pre-test N = 70 and post-test N=55). The findings demonstrated that the awareness, knowledge, and utilization of the Clearinghouse's services by members of the self-help community and human service professionals increased over a 21/2-year period. Statistically significant differences were noted among both groups in terms of increased awareness and utilization of the Clearinghouse. As well, professionals' increased knowledge of information and referral services and the directory and the self-help groups' perception of a need for a unique organization dealing with self-help were statistically significant. Both groups perceived a need for a distinct clearinghouse for self-help groups and were very satisfied with the services of the Self-Help Clearinghouse in Metropolitan Toronto.


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