scholarly journals 14 / ADOLESCENT AND YOUNG ADULT CENTRAL NERVOUS SYSTEM TUMOR SURVIVORS: DOCUMENTATION OF LATE EFFECTS RISKS AND SCREENING RECOMMENDATIONS IN BRITISH COLUMBIA, CANADA

Author(s):  
Fuchsia Howard ◽  
Karen Goddard
Author(s):  
A. Fuchsia Howard ◽  
Jordan Tran ◽  
Avril Ullett ◽  
Michael McKenzie ◽  
Karen Goddard

Survivors of adolescent and young adult (AYA) central nervous system (CNS) neoplasms are at risk for late effects (LE) - treatment-related health problems occurring more than 5 years after therapy). Since, in Canada, AYA survivors are usually followed in the community, information must be conveyed to primary care providers to guide risk-based follow-up care. Objective: To assess documentation of LE risks and screening recommendations (SR) in medical records of AYA CNS tumor survivors treated with radiation therapy. Methods: The medical records of all patients diagnosed with a CNS neoplasm (benign or malignant) at ages 15-39 years, treated between 1985 and 2010 in the province of British Columbia, surviving >5 years and discharged to the community were assessed. Documentation of LE and SR were extracted, and analyzed descriptively. Results: Among 132 survivors (52% female), treated with radiation therapy (95% partial brain, 10% craniospinal, 8% partial spine, and 4% whole brain) and chemotherapy (17%), 19% of charts included no documentation of LE risks, 26% included only non-specific documentation, and 55% had minimal documentation (1 or 2 LE). Documentation of at least one specific LE increased from 24% in 1980-1989, to 54% in 1990-1999, to 86% in 2000 – 2010. Based on treatment information, all survivors were at high-risk for LE, such as radiation induced neoplasm, meningioma and cerebrovascular events. Yet, SR were documented in only 25% of charts. Conclusions: The documentation of LE risks and screening recommendations has been limited, highlighting the need to improve written communication with primary care providers.


1994 ◽  
Vol 34 (2) ◽  
pp. 171-174 ◽  
Author(s):  
Henry S. Friedman ◽  
Peter J. Houghton ◽  
S. Clifford Schold ◽  
Stephen Keir ◽  
Darell D. Bigner

2018 ◽  
Vol 39 (3) ◽  
pp. 159-166
Author(s):  
Kara Schuele ◽  
Andrea E. Bennett ◽  
Taniya Varughese ◽  
Regina Abel ◽  
Claire Reichenbacher ◽  
...  

1994 ◽  
Vol 34 (2) ◽  
pp. 171-174 ◽  
Author(s):  
Henry S. Friedman? ◽  
Peter J. Houghton ◽  
S. Clifford Schold ◽  
Stephen Keir ◽  
Darell D. Bigner

Sign in / Sign up

Export Citation Format

Share Document