scholarly journals Children with disabilities in the United States and the COVID-19 pandemic

2020 ◽  
Vol 13 (3) ◽  
pp. 415-424
Author(s):  
Amy Houtrow ◽  
Debbi Harris ◽  
Ashli Molinero ◽  
Tal Levin-Decanini ◽  
Christopher Robichaud

Children with disabilities are disproportionately impacted by COVID-19 and the containment response. Their caregivers must now adapt to increased stressors such as lack of access to needed therapies, medical supplies, and nursing care. Prior to COVID-19 these families were already marginalized, and this has only worsened during the pandemic. As a vulnerable population, children with disabilities have not been the focus of much discussion during the pandemic, likely because the disease disproportionately impacts older individuals. Nonetheless, children with disabilities should be a focus of evaluation and intervention to mitigate the negative consequences of COVID-19 and the resulting containment strategies. Their needs should be included in future crisis planning, as well. In order to raise awareness of pediatric rehabilitation professionals, health care administrators, policy makers, and advocates, this manuscript provides a discussion of the following topics: the immediate and ongoing impacts on children with disabilities and their families, the ethical concerns and implications of triage protocols for scarce resources that consider disability in their scoring systems, and optimizing medical care and educational needs in the time of COVID.

Inclusion ◽  
2014 ◽  
Vol 2 (3) ◽  
pp. 212-226 ◽  
Author(s):  
George H. S. Singer ◽  
Mian Wang

Abstract This article reflects on a few of the major intellectual contributions Ann and Rud Turnbull and their colleagues at the Beach Center on Family and Disability have made to their academic fields and to the wider society. The focus is on some of their key ideas that have been particularly innovative and important in changing the way scholars, policy makers, practitioners, and parents understand families of children with disabilities. The state of affairs in 1960 for a family of a newborn with an intellectual disability is compared to present conditions in order to highlight the extent of the historic shift in how the United States addresses the needs of families of children with disabilities. Four key intellectual contributions by the Turnbulls are discussed, with attention given to the social context in which they were developed and their subsequent impact on family research, policy, and professional practices. The importance of the development of new measurement instruments is emphasized and their value is discussed in both redirecting research and bridging the gap between academic audiences and the families who are meant to benefit from this work.


2020 ◽  
Vol 8 (1) ◽  
pp. 89-140
Author(s):  
Marc Lane Roark

How do you drive economic enterprise in a financial desert? Indian tribes, academics, economists, and policy makers have considered the means and methods for energizing economic growth for forty years. Efforts such as the creation and promotion of the Model Tribal Secured Transactions Act (“MTSTA”) promise much toward creating conditions that would gather financial opportunity to tribal regions that experience poverty at a strikingly higher rate than any other place in the United States. And yet, while the law has been available for more than ten years, tribes have been reticent to adopt it. This Article fills the vacuum in the literature around the promise of uniform laws in Indian Country by describing the inherent tension that exists between downscaling uniform laws into tribal contexts and the localism that seeks to preserve localized values. This Article argues that tribal choices to accept uniformity or reject uniformity in these areas are built around a combination of formal associations and organic relationships designed to create “institutional thickness” in the face of other scarce resources.


1987 ◽  
Vol 19 (9) ◽  
pp. 97-106
Author(s):  
J. J. Vasconcelos

Hater resource managers in semi-arid regions are faced with some unique problems. The wide variations in precipitation and stream flows in semi-arid regions increase man's dependence on the ground water resource for an ample and reliable supply of water. Proper management of the ground water resource is absolutely essential to the economic well being of semi-arid regions. Historians have discovered the remains of vanished advanced civilizations based on irrigated agriculture which were ignorant of the importance of proper ground water resource management. In the United States a great deal of effort is presently being expended in the study and control of toxic discharges to the ground water resource. What many public policy makers fail to understand is that the potential loss to society resulting from the mineralization of the ground water resource is potentially much greater than the loss caused by toxic wastes discharges, particularly in developing countries. Appropriations for ground water resource management studies in developed countries such as the United States are presently much less than those for toxic wastes management and should be increased. It is the reponsibility of the water resource professional to emphasize to public policy makers the importance of ground water resource management. Applications of ground water resource management models in the semi-arid Central Valley of California are presented. The results demonstrate the need for proper ground water resource management practices in semi-arid regions and the use of ground water management models as a valuable tool for the water resource manager.


Author(s):  
Md. Ziaul Haque

The tourism sector is experiencing numerous challenges as a result of the global economic crisis. After a significant contraction in 2009, tourism rebounded strongly  in  2010  and  in  2011  the  international  tourist  arrivals  and  receipts  are projected to increase substantially. The Tourism industry is expected to show a sustained recovery in 2012. The crisis has particularly strong impact and slightly negative consequences in Bangladesh. The country is undergoing a political crisis, as well, and it seems that the forthcoming elections may be the only solution for the restoration of stability and social peace.  In addition, tourism can be the driving force behind Bangladesh economic recovery. However, for its achievement the country’s policy makers should take several measures towards restructuring and improving the sector. These measures include: enhancement of alternative forms of tourism; environmental protection; creation of quality infrastructure; and boost of competitiveness through a tourism product that offers value for money


Author(s):  
Md. Ziaul Haque

The tourism sector is experiencing numerous challenges as a result of the global economic crisis. After a significant contraction in 2009, tourism rebounded strongly  in  2010  and  in  2011  the  international  tourist  arrivals  and  receipts  are projected to increase substantially. The Tourism industry is expected to show a sustained recovery in 2012. The crisis has particularly strong impact and slightly negative consequences in Bangladesh. The country is undergoing a political crisis, as well, and it seems that the forthcoming elections may be the only solution for the restoration of stability and social peace.  In addition, tourism can be the driving force behind Bangladesh economic recovery. However, for its achievement the country’s policy makers should take several measures towards restructuring and improving the sector. These measures include: enhancement of alternative forms of tourism; environmental protection; creation of quality infrastructure; and boost of competitiveness through a tourism product that offers value for money


Climate change is a profoundly social and political challenge with many social justice concerns around every corner. A global issue, climate change threatens the well-being, livelihood, and survival of people in communities worldwide. Often, those who have contributed least to climate change are the most likely to suffer from its negative consequences and are often excluded from the policy discussions and decisions that affect their lives. This book pays particular attention to the social dimensions of climate change. It examines closely people’s lived experience, climate-related injustice and inequity, why some groups are more vulnerable than others, and what can be done about it—especially through greater community inclusion in policy change. A highlight of the book is its diversity of rich, community-based examples from throughout the Global South and North. Sacrificial flood zones in urban Argentina, forced relocation of United Houma tribal members in the United States, and gendered water insecurities in Bangladesh and Australia are just some of the in-depth cases included in the book. Throughout, the book asks social and political questions about climate change. Of key importance, it asks what can be done about the unequal consequences of climate change by questioning and transforming social institutions and arrangements—guided by values that prioritize the experience of affected groups and the inclusion of diverse voices and communities in the policy process.


2021 ◽  
pp. 000276422199283
Author(s):  
Serena Tagliacozzo ◽  
Frederike Albrecht ◽  
N. Emel Ganapati

Communicating during a crisis can be challenging for public agencies as their communication ecology becomes increasingly complex while the need for fast and reliable public communication remains high. Using the lens of communication ecology, this study examines the online communication of national public health agencies during the COVID-19 pandemic in Italy, Sweden, and the United States. Based on content analysis of Twitter data ( n = 856) and agency press releases ( n = 95), this article investigates two main questions: (1) How, and to what extent, did national public health agencies coordinate their online communication with other agencies and organizations? (2) How was online communication from the agencies diversified in terms of targeting specific organizations and social groups? Our findings indicate that public health agencies relied heavily on internal scientific expertise and predominately coordinated their communication efforts with national government agencies. Furthermore, our analysis reveals that agencies in each country differed in how they diversify information; however, all agencies provided tailored information to at least some organizations and social groups. Across the three countries, information tailored for several vulnerable groups (e.g., pregnant women, people with disabilities, immigrants, and homeless populations) was largely absent, which may contribute to negative consequences for these groups.


2020 ◽  
pp. 1-4
Author(s):  
Madhusudan Ganigara ◽  
Chetan Sharma ◽  
Fernando Molina Berganza ◽  
Krittika Joshi ◽  
Andrew D. Blaufox ◽  
...  

Abstract The coronavirus disease 2019 (COVID-19) pandemic has had a profound impact on medical educational curricula. We aimed to examine the impact of these unprecedented changes on the formal education of paediatric cardiology fellows through a nationwide survey. A REDCap™-based voluntary anonymous survey was sent to all current paediatric cardiology fellows in the United States of America in May, 2020. Of 143 respondents, 121 were categorical fellows, representing over one-fourth of all categorical paediatric cardiology fellows in the United States of America. Nearly all (140/143, 97.9%) respondents utilised online learning during the pandemic, with 134 (93.7%) reporting an increase in use compared to pre-pandemic. The percentage of respondents reporting curriculum supplementation with outside lectures increased from 11.9 to 88.8% during the pandemic. Respondents considered online learning to be “equally or more effective” than in-person lectures in convenience (133/142, 93.7%), improving fellow attendance (132/142, 93.0%), improving non-fellow attendance (126/143, 88.1%), and meeting individual learning needs (101/143, 70.6%). The pandemic positively affected the lecture curriculum of 83 respondents (58.0%), with 35 (24.5%) reporting no change and 25 (17.5%) reporting a negative effect. A positive effect was most noted by those whose programmes utilised supplemental outside lectures (62.2 versus 25.0%, p = 0.004) and those whose lecture frequency did not decrease (65.1 versus 5.9%, p < 0.001). Restrictions imposed by the COVID-19 pandemic have greatly increased utilisation of online learning platforms by medical training programmes. This survey reveals that an online lecture curriculum, despite inherent obstacles, offers advantages that may mitigate some negative consequences of the pandemic on fellowship education.


1994 ◽  
Vol 20 (1-2) ◽  
pp. 203-229
Author(s):  
John D. Blum

National economies worldwide are in disarray, evidenced by escalating debts and growing deficits. As countries struggle with their faltering economies they are hard pressed to fulfill commitments of social programs made in more prosperous times, much less take on new government initiatives. The current experiences in health reform in the United States present an interesting example of the dilemmas governments now face when they embark on new ventures. While great political pressures have been launched and high expectations abound, the reality of American health reform quickly reveals that expanded access will come at a high price that won't be offset easily by conventional cost containment or market forces.In the search for an acceptable model for health reform, it was popular for policy makers and academics to turn their attentions to the health systems of other nations. Recommendations were made that the US should adopt a German or Canadian solution for our health problems.


2021 ◽  
Vol 14 (1) ◽  
Author(s):  
Ye Emma Zohner ◽  
Jeffrey S. Morris

Abstract Background The COVID-19 pandemic has caused major health and socio-economic disruptions worldwide. Accurate investigation of emerging data is crucial to inform policy makers as they construct viral mitigation strategies. Complications such as variable testing rates and time lags in counting cases, hospitalizations and deaths make it challenging to accurately track and identify true infectious surges from available data, and requires a multi-modal approach that simultaneously considers testing, incidence, hospitalizations, and deaths. Although many websites and applications report a subset of these data, none of them provide graphical displays capable of comparing different states or countries on all these measures as well as various useful quantities derived from them. Here we introduce a freely available dynamic representation tool, COVID-TRACK, that allows the user to simultaneously assess time trends in these measures and compare various states or countries, equipping them with a tool to investigate the potential effects of the different mitigation strategies and timelines used by various jurisdictions. Findings COVID-TRACK is a Python based web-application that provides a platform for tracking testing, incidence, hospitalizations, and deaths related to COVID-19 along with various derived quantities. Our application makes the comparison across states in the USA and countries in the world easy to explore, with useful transformation options including per capita, log scale, and/or moving averages. We illustrate its use by assessing various viral trends in the USA and Europe. Conclusion The COVID-TRACK web-application is a user-friendly analytical tool to compare data and trends related to the COVID-19 pandemic across areas in the United States and worldwide. Our tracking tool provides a unique platform where trends can be monitored across geographical areas in the coming months to watch how the pandemic waxes and wanes over time at different locations around the USA and the globe.


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