scholarly journals Individualism and the Decision to Withdraw Life Support

Societies ◽  
2018 ◽  
Vol 8 (4) ◽  
pp. 117
Author(s):  
Louise Chartrand
Keyword(s):  
Health Care ◽  
End Of Life ◽  
Decision Maker ◽  
Life Support ◽  
Qualitative Description ◽  
Medical Decision ◽  
End Of Life Decisions ◽  
Patient’S Autonomy ◽  
Withdraw Life Support ◽  
Alternative Decision

The 1996 Health Care Consent Act of Ontario (Canada) is a law that regulates medical decision making. Therefore, it also gives indications on how end of life decisions should be made. The goal of the law was to ensure and protect patient’s autonomy and avoid medical paternalism, especially at the end of life. Throughout this article, I would like to argue that one of the consequences of the 1996 Health Care Consent Act of Ontario is to promote individualism. Therefore, this law makes it improbable to attain a shared decision model. More specifically, the way the 1996 Health Care Consent Act is currently written, a proxy is assigned as a decision-maker for someone who is deemed incompetent. However, it also ensures that the proxy will be the only one with the burden of that decision. This argument will be supported by providing a qualitative description of three cases that I have encountered during my six-month fieldwork in the Intensive Care Unit (ICU) of a hospital located in Ontario. This paper offers a reflection upon the consequences of using an alternative decision maker (proxy) to withdraw life support.

Distinguishing between Assisting and Substituting for Vital Organs

2016 ◽  
Vol 41 (9) ◽  
pp. 1-2
Author(s):  
Alfred Cioffi ◽  
Keyword(s):  
Health Care ◽  
End Of Life ◽  
Health Care Professionals ◽  
Moral Obligation ◽  
Life Support ◽  
Vital Organ ◽  
Vital Function ◽  
Know How ◽  
Futile Care ◽  
Extraordinary Means

When patients approach the end of life, their loved ones often do not know how much treatment is too much and struggle to decide when to stop intervening and allow them to die in peace. Conversely, health care professionals may tend to prescribe extraordinary means of life support, sometimes simply because of legal and fiscal concerns or a family’s request for futile care. It can be useful to refer to the general bioethical principle that, typically, there is no moral obligation to provide a substitute for vital organs. In this context, providing a substitute for a vital organ means wholly replacing the vital function of the dying organ by means of either a transplant or medical machinery. This article seeks to explain how this rule may be applied when a patient and his family are deciding at what point to stop treatment and allow the patient to die in peace.

scholarly journals Trends and Patterns in the Public Awareness of Palliative Care, Euthanasia, and End-of-Life Decisions in 3 Central European Countries Using Big Data Analysis From Google: Retrospective Analysis (Preprint)

2021 ◽  
Author(s):  
Matthias Huemer ◽  
Daniela Jahn-Kuch ◽  
Guenter Hofmann ◽  
Elisabeth Andritsch ◽  
Clemens Farkas ◽  
...  
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
End Of Life ◽  
Assisted Suicide ◽  
Public Awareness ◽  
End Of Life Decisions ◽  
The Public ◽  
Care Services ◽  
Life Decisions ◽  
Advance Health Care Directives

BACKGROUND End-of-life decisions, specifically the provision of euthanasia and assisted suicide services, challenge traditional medical and ethical principles. Austria and Germany have decided to liberalize their laws restricting assisted suicide, thus reigniting the debate about a meaningful framework in which the practice should be embedded. Evidence of the relevance of assisted suicide and euthanasia for the general population in Germany and Austria is limited. OBJECTIVE The aim of this study is to examine whether the public awareness documented by search activities in the most frequently used search engine, Google, on the topics of <i>palliative care, euthanasia</i>, and <i>advance health care directives</i> changed with the implementation of palliative care services and new governmental regulations concerning end-of-life decisions. METHODS We searched for policies, laws, and regulations promulgated or amended in Austria, Germany, and Switzerland between 2004 and 2020 and extracted data on the search volume for each search term topic from Google Trends as a surrogate of public awareness and interest. Annual averages were analyzed using the Joinpoint Regression Program. RESULTS Important policy changes yielded significant changes in search trends for the investigated topics. The enactment of laws regulating advance health care directives coincided with a significant drop in the volume of searches for the topic of euthanasia in all 3 countries (Austria: −24.48%, <i>P</i>=.02; Germany: −14.95%, <i>P</i><.001; Switzerland: −11.75%, <i>P</i>=.049). Interest in palliative care increased with the availability of care services and the implementation of laws and policies to promote palliative care (Austria: 22.69%, <i>P</i>=.01; Germany: 14.39, <i>P</i><.001; Switzerland: 17.59%, <i>P</i><.001). The search trends for advance health care directives showed mixed results. While interest remained steady in Austria within the study period, it increased by 3.66% (<i>P</i><.001) in Switzerland and decreased by 2.85% (<i>P</i><.001) in Germany. CONCLUSIONS Our results demonstrate that legal measures securing patients’ autonomy at the end of life may lower the search activities for topics related to euthanasia and assisted suicide. Palliative care may be a meaningful way to raise awareness of the different options for end-of-life care and to guide patients in their decision-making process regarding the same.

Communication, Negotiation, and Mediation: Dealing with Conflict in End-of-Life Decisions

2000 ◽  
Vol 16 (1_suppl) ◽  
pp. S17-S23 ◽  
Author(s):  
Kerry W. Bowman
Keyword(s):  
Health Care ◽  
Intensive Care Unit ◽  
Intensive Care ◽  
End Of Life ◽  
Cultural Differences ◽  
End Of Life Care ◽  
Family Dynamics ◽  
Life Care ◽  
Health Care Teams ◽  
End Of Life Decisions

In recent years, it has become possible for the end of life to be a negotiated event, particularly in the intensive care unit. A multitude of often unidentified and poorly understood factors affect such negotiations. These include, family dynamics, ever-changing health care teams, inconsistent opinions about prognosis, and cultural differences between physicians, and patients and their families. When these factors converge, conflict may erupt. This article explores the nature, antecedents, and cost of such conflict. Arguments for the importance of balanced communication, negotiation, and mediation in end-of-life care are put forward.

What parents want from doctors in end-of-life decision-making for children

2013 ◽  
Vol 99 (3) ◽  
pp. 216-220 ◽  
Author(s):  
J Sullivan ◽  
P Monagle ◽  
L Gillam
Keyword(s):  
Decision Making ◽  
End Of Life ◽  
Decision Maker ◽  
Semistructured Interview ◽  
End Of Life Decisions ◽  
Parental Autonomy ◽  
End Of Life Decision ◽  
Life Decision

ObjectiveEnd-of-life decision-making is difficult for everyone involved, as many studies have shown. Within this complexity, there has been little information on how parents see the role of doctors in end-of-life decision-making for children. This study aimed to examine parents’ views and experiences of end-of-life decision-making.DesignA qualitative method with a semistructured interview design was used.SettingParent participants were living in the community.ParticipantsTwenty-five bereaved parents.Main outcomesParents reported varying roles taken by doctors: being the provider of information without opinion; giving information and advice as to the decision that should be taken; and seemingly being the decision maker for the child. The majority of parents found their child's doctor enabled them to be the ultimate decision maker for their child, which was what they very clearly wanted to be, and consequently enabled them to exercise their parental autonomy. Parents found it problematic when doctors took over decision-making. A less frequently reported, yet significant role for doctors was to affirm decisions after they had been made by parents. Other important aspects of the doctor's role were to provide follow-up support and referral.ConclusionsUnderstanding the role that doctors take in end-of-life decisions, and the subsequent impact of that role from the perspective of parents can form the basis of better informed clinical practice.

scholarly journals Feasibility and Acceptability of an mHealth ACP Tool in Primary Care

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 516-517
Author(s):  
Desh Mohan ◽  
Katelin Cherry ◽  
Tatiana Fofanova ◽  
Taylor Huffman ◽  
Glenn Davis ◽  
...  
Keyword(s):  
Primary Care ◽  
Decision Maker ◽  
Advance Care Planning ◽  
Life Support ◽  
Medical Decision ◽  
Care Planning ◽  
Surrogate Decision Maker ◽  
Advance Care ◽  
Surrogate Decision ◽  
Planning Concepts

Abstract With only 7% of Medicare beneficiaries having completed Advance Care Planning with their physicians, engagement in Advance Care Planning in the clinical setting has been historically low. This study investigated the feasibility of introducing the Koda Health Advance Care Planning software platform in the primary care setting, and whether patients would engage in advance care planning through this medium. The Koda platform is a video-driven, web application that guides patients through advance care planning concepts, including values and quality of life exploration, surrogate decision maker selection, life-support treatments, and advance directive completion. The study was completed over a six-month period in two primary care clinics in the Houston, Texas area. Inclusion criteria were age 55 or older, English-speaking, and capacity for medical decision making. 339 patients met eligibility criteria and had a median age of 73 (range 59-89). All participants were offered the platform, and 262 (77%) created an account and began planning for their care. Of the patients that created an account, 87% completed all ACP steps on the platform and 72% identified a surrogate decision maker. The median time spent on the platform was 18 minutes. The Koda platform appears to be a useful tool for patients and providers to improve engagement in advance care planning and improve surrogate decision maker identification. Further research is needed to understand whether the Koda platform aids in providing goal-concordant care.

Waiting for a miracle or best medical practice? End-of-life medical ethical dilemmas in Bahrain

2019 ◽  
Vol 45 (6) ◽  
pp. 367-372 ◽  
Author(s):  
Sayed Alwadaei ◽  
Barrak Almoosawi ◽  
Hani Humaidan ◽  
Susan Dovey
Keyword(s):  
Decision Making ◽  
End Of Life ◽  
Medical Practice ◽  
Life Support ◽  
Cultural Dimensions ◽  
End Of Life Decisions ◽  
Brain Dead ◽  
Life Decisions ◽  
End Of Life Decision ◽  
Life Decision

Background and objectivesIn Bahrain, maintaining life support at all costs is a cultural value considered to be embedded in the Islamic religion. We explore end-of-life decision making for brain dead patients in an Arab country where medical cultures are dominated by Western ideas and the lay culture is Eastern.MethodsIn-depth interviews were conducted from February to April 2018 with 12 Western-educated Bahraini doctors whose medical practice often included end-of-life decision making. Discussions were about who should make withdrawal of life support decisions, how decisions are made and the context for decision making. To develop results, we used the inductive method of thematic analysis.ResultsInformants considered it difficult to engage non-medical people in end-of-life decisions because of people’s reluctance to talk about death and no legal clarity about medical responsibilities. There was disagreement about doctors’ roles with some saying that end-of-life decisions were purely medical or purely religious but most maintaining that such decisions need to be collectively owned by medicine, patients, families, religious advisors and society. Informants practised in a legal vacuum that made their ethics interpretations and clinical decision making idiosyncratic regarding end-of-life care for brain dead patients. Participants referred to contrasts between their current practice and previous work in other countries, recognising the influences of religious and cultural dimensions on their practice in Bahrain.ConclusionsEnd-of-life decisions challenge Western-trained doctors in Bahrain as they grapple with aligning respect for local culture with their training in the ethical practice of Western medicine.

End-of-life decisions and appropriateness of care in intensive care: a cross-sectional, pilot study

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
F Cescon ◽  
E Monaco ◽  
D Gregori ◽  
M Martinato
Keyword(s):  
Intensive Care ◽  
Pilot Study ◽  
End Of Life ◽  
Life Support ◽  
High Rate ◽  
Cross Sectional ◽  
End Of Life Decisions ◽  
Inappropriate Care ◽  
Organ Failures ◽  
Life Decisions

Abstract In Intensive Care Units (ICUs) patients can experience severe organ failures. In several cases, failures can be incurable, making many of the treatments inappropriate, according to ethical principles. Based on the current legislation, in ICUs, clinicians proceed to limit life support care in most of the cases described. Despite this, some studies report that in many cases the care provided is inappropriate for the prognosis. The study aims at investigating the type and frequency of healthcare personnel's End of Life Decisions (DEL) and the point of view of patients' family, contributing to the debate. A non-interventional cross-sectional pilot study was conducted in 3 ICUs in North-Eastern Italy. Two questionnaires were administered: the first investigates DEL and the perception of nurses and physicians regarding the inadequacy of care provided to patients (from the ELDY study), the second focuses on the family's opinions. Data are expressed by frequencies, percentages, means and standard deviations. In line with most of previous studies, cases identified as DEL are all related to non-treatment decisions (n = 20, 74%), 44% of these are related to having stopped or not started treatments already knowing the possibility of anticipating the end of life of the patient, while 27% had the precise intention of shortening life. The situation has been discussed with patient's relatives only in two cases. The cause of increased inappropriateness (87%) was the perception that other patients would benefit more from intensive care than the patient in charge, and 40% of the healthcare personnel reported that similar situations occur very frequently. The restriction of treatment has been confirmed as the most frequent DEL, and interruption being more frequent than non-implementation. Given the high rate of inappropriate care, it could be effective to follow adequate guidelines in the management of the DEL and discuss strategies within the team and with patients' family. Key messages When severe organ failures are incurable, in ICUs clinicians proceed to limit life support to the patient in charge. Despite this, in many cases the care provided is inappropriate for the prognosis. Given the high rate of inappropriate care, it could be effective to follow adequate guidelines in the management of the DEL and discuss strategies within the team and with patients’ family.

scholarly journals Policies to improve end-of-life decisions in Flemish hospitals: communication, training of health care providers and use of quality assessments

2009 ◽  
Vol 8 (1) ◽  
Author(s):  
Ina D'Haene ◽  
Robert H Vander Stichele ◽  
H Roeline W Pasman ◽  
Nele Van den Noortgate ◽  
Johan Bilsen ◽  
...  
Keyword(s):  
Health Care ◽  
End Of Life ◽  
Health Care Providers ◽  
Communication Training ◽  
Care Providers ◽  
End Of Life Decisions ◽  
Life Decisions ◽  
Quality Assessments
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