The Quality of Life of Children with Precocious Puberty and Healthy Children in Turkey

2021 ◽  
Vol 45 (1) ◽  
pp. 62-70
Author(s):  
Ahu P. Turan ◽  
Selen O. Akca
Keyword(s):  
Quality Of Life ◽  
Precocious Puberty ◽  
Psychosocial Support ◽  
Healthy Children ◽  
Pediatric Nurses ◽  
Proxy Report ◽  
Quality Of Life Inventory ◽  
The Mean ◽  
Life Inventory

Objectives: We compared the quality of life (QoL) in children with precocious puberty (PP) and healthy children aged 8-12 years. Methods: This descriptive and comparative study was conducted with 105 children with a diagnosis of PP and another 105 healthy children. We collected data using a Descriptive Information Form and the Pediatric Quality of Life Inventory (PedsQL). Results: The mean overall PedsQL score (OS) was 78.71 ± 10.84 for children with PP and 82.43 ± 9.81 for healthy children (p < .05). The mean PedsQL Proxy-Report OS was 74.51 ± 13.27 for children with PP and 81.90 ± 9.86 for healthy children (p < .001). Conclusions: We found QoL of children with PP was lower than that of healthy children. In this context, pediatric nurses may have a role in early identification of children with PP and provide psychosocial support using a multidisciplinary approach to counseling.

Children with hypoplastic left heart syndrome have lower quality of life than healthy controls and children with other illnesses

2017 ◽  
Vol 28 (1) ◽  
pp. 21-26 ◽  
Author(s):  
Nicole Dempster ◽  
Clifford L Cua ◽  
Gil Wernovsky ◽  
Elizabeth Caris ◽  
Trent Neely ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hypoplastic Left Heart Syndrome ◽  
Healthy Children ◽  
Left Heart ◽  
Hypoplastic Left Heart ◽  
Medical Diagnoses ◽  
Quality Of Life Inventory ◽  
Left Heart Syndrome ◽  
Life Inventory

AbstractObjectivePrevious studies suggest that children with congenital cardiac diagnoses report lower quality of life when compared with healthy norms. A few studies have evaluated quality of life specifically in children born with hypoplastic left heart syndrome, a condition requiring several surgeries before age three. The aim of this study was to use an empirically validated and standardised measure – the Pediatric Quality of Life Inventory – to evaluate quality of life in children with hypoplastic left heart syndrome and compare the findings with similar, medically complicated samples.MethodsThe parent-report Pediatric Quality of Life Inventory was administered, and demographic information was collected through an internet portal. A total of 121 caregivers of children with hypoplastic left heart syndrome responded. The sample included children aged 2–18 years (M=10.81 years). Independent sample t-tests were used to compare our sample with published norms of healthy children and children with acute or chronic illnesses.ResultsChildren with hypoplastic left heart syndrome were rated as having significantly lower overall quality-of-life scores (M=59.69) compared with published norms of children without medical diagnoses (M=83.00) and those with acute (M=78.70) or chronic (M=77.19) illnesses (p<0.001). Children with hypoplastic left heart syndrome complicated by a stroke or seizure (15%) reported the lowest quality of life. The results held for all subscales (p<0.001).ConclusionsChildren with hypoplastic left heart syndrome appear to be a significantly vulnerable population with difficulties in functioning across psychosocial domains and across the age span. Further research is required to facilitate early identification of the need for resources for these children and families, especially for children who experience additional medical complications.

scholarly journals Laparoscopic Pectopexy: An Effective Procedure for Pelvic Organ Prolapse with an Evident Improvement on Quality of Life

2021 ◽  
Vol 122 (1) ◽  
pp. 25-33
Author(s):  
Aybike Karslı ◽  
Onur Karslı ◽  
Ahmet Kale
Keyword(s):  
Quality Of Life ◽  
Pelvic Organ Prolapse ◽  
Pelvic Organ ◽  
Exclusion Criteria ◽  
Sexual Quality Of Life ◽  
Quality Of Life Inventory ◽  
Related Quality ◽  
The Mean ◽  
Life Inventory

It has been stated that the effectiveness of pectopexy method for the treatment of pelvic organ prolapse (POP) is similar to sacrocolpopexy. We aimed to search the effects of pectopexy method to the quality of life, sexual function and urinary incontinence. Thirty-one patients who were operated for POP with the technique of laparoscopic pectouteropexy/pectocolpopexy between January 2016 and November 2017 were included the study. Exclusion criteria were pelvic inflammatory disease, suspect of malignancy, pregnancy, prior POP or continence surgery. Quality of life inventories were (P-QOL, PISQ-12, UDI-6, IIQ-7) recorded preoperatively and at the postoperative third month. Results were compared statistically. The percentage of patients with menopause was 67.7% (n=21) and with reproductive term was 32.3% (n=10). Mean prolapse related quality of life inventory (P-QOL) score was 83.45 ± 8.7 (64–98) preoperatively and 8.61 ± 6.4 (0–23) postoperatively (p<0.05). The preoperative and postoperative score of quality of life inventories for urinary symptoms were 20 (15–21) and 2 (0–9) for IIQ-7 and 13 (3–18) and 4 (0–11) for UDI-6, respectively (p<0.05). The mean PISQ-12 sexual quality of life inventory score was 29.61 ± 4.8 (14–38) preoperatively and 7.1 ± 3.2 (1–13) postoperatively. According to our results laparoscopic pectopexy offers a feasible, safe and comfortable alternative for apical prolapse surgery.

scholarly journals Effect of Monotherapy with Methotrexate, Etanercept and their Combination on the Quality of Life in Children with Early and Late Juvenile Idiopathic Arthritis: A Prospective Study

2018 ◽  
Vol 17 (4) ◽  
pp. 289-300
Author(s):  
Anna N. Fetisova ◽  
Tatyana M. Dvoryakovskaya ◽  
Vladislav V. Chernikov ◽  
Irina V. Vinyarskaya ◽  
Rina V. Denisova ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Juvenile Idiopathic Arthritis ◽  
Combination Therapy ◽  
Prospective Study ◽  
Physical Functioning ◽  
Healthy Children ◽  
Etanercept Therapy ◽  
Quality Of Life Inventory ◽  
Life Inventory

Background. An important goal of treating patients with juvenile idiopathic arthritis (JIA) is to achieve the best quality of life associated with health. Objective. Our aim was to assess the impact of methotrexate plus etanercept therapy on the quality of life of patients with early and late JIA. Methods. The prospective study included patients with early and late JIA without systemic manifestations. The patients’ quality of life was assessed with the help of questionnaires for children and parents: the Pediatric Quality of Life Inventory (PedsQL) Generic Core Scale, the Pediatric Quality of Life Inventory (PedsQL) Rheumatology Module, and the Health Utilities Index Mark 3 (HUI3). The quality of life was assessed prior to the therapy and after one, six, and 12 months of treatment. Results. 150 children with JIA aged 5.1 (2.0; 17.7) years; 50 children aged 4.0 (2.3–11.4) years in the group of etanercept monotherapy, 50 children aged 5.0 (3.2–9.0) years in the group of methotrexate monotherapy, and 50 children aged 9.9 (6.4–13.0) years in the group of methotrexate plus etanercept combination therapy. All groups showed low scores on all questionnaires before treatment, compared to healthy children. In the course of therapy, there was a tendency for score increase to almost 1.0 according to the HUI3 questionnaire in all groups. After one year of etanercept therapy, the parameters of the quality of life of children with early JIA did not differ from healthy children; the score increased from 56 to 90 p = 0.942 according to the physical functioning scale and from 60 to 85 p = 0.889 according to the emotional functioning scale. In the 2nd group, there was a tendency for score increase, but a statistically significant difference was found across all scales of the questionnaire. After 12 months of etanercept plus methotrexate combination therapy in patients with late JIA, the questionnaire analysis showed that the responses of healthy children and children with JIA differed with probability p = 0.001 for the physical functioning scale, p = 0.001 for the social functioning scale, p = 0.001 for role functioning, and p = 0.001 for the total score. The score increase from 60 to 85 p = 0.789 was noted for emotional functioning scales. Conclusion. The use of questionnaires to assess the quality of life in children with severe chronic diseases can significantly improve the efficacy of treatment and ensure its control.

Associations of Age, Gender, and Family Income with Quality of Life in Children With Advanced Cancer

2021 ◽  
pp. 104345422199232
Author(s):  
Piera C. Robson ◽  
Mary S. Dietrich ◽  
Terrah Foster Akard
Keyword(s):  
Quality Of Life ◽  
Advanced Cancer ◽  
Family Income ◽  
Hematologic Malignancy ◽  
Secondary Analysis ◽  
Quality Of Life Inventory ◽  
Younger Age ◽  
Self Reports ◽  
Life Inventory

Background: Children with cancer often experience decreased quality of life (QOL) throughout the illness trajectory. The purpose of this study was to explore the associations of demographic characteristics with QOL in children with advanced cancer. Methods: This secondary analysis was part of a larger randomized clinical trial that evaluated the efficacy of a legacy intervention for children (7–17 years) with relapsed/refractory cancer and their primary parent caregivers. Assessments included child self-reports on the Pediatric Quality of Life Inventory (PedsQL) Cancer Module. Researchers used descriptive and linear regression statistical methods. Results: Children ( n = 128) averaged 10.9 years (SD = 3.0). The majority were female ( n = 68, 53%), white ( n = 107, 84%), had a hematologic malignancy ( n = 67, 52%), with family incomes of $50,000 or less ( n = 81, 63.3%). Statistically significant positive associations of both age and income level with PedsQL scores were observed ( p < .05) but not gender ( p > .05). The strongest correlations for age were with the procedural anxiety ( beta = 0.42), treatment anxiety ( beta = 0.26), and total ( beta = 0.28) scores (all p < .01). In general, there was a positive correlation between family income levels and PedsQL scores ( p < .05). The strongest correlations for income were with nausea ( R = 0.49), appearance ( R = 0.44), pain, and treatment anxiety (both R = 0.42) (all p < .01). Associations adjusted for age remained essentially the same (all p < .01). Discussion: Children with advanced cancer with lower family income and younger age are at high risk for poorer QOL. Oncology nurses should seek to identify families who may benefit from additional resources to promote QOL.

Validity and reliability of the French version of the Pediatric Quality of Life Inventory™ brain tumor module

2021 ◽  
Author(s):  
Maxime Caru ◽  
Sébastien Perreault ◽  
Ariane Levesque ◽  
Serge Sultan ◽  
Leandra Desjardins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Validity And Reliability ◽  
French Version ◽  
Quality Of Life Inventory ◽  
Life Inventory

The development of the Tuebingen Cushing’s disease quality of life inventory (Tuebingen CD-25). Part II: normative data from 1784 healthy people

2012 ◽  
Vol 76 (6) ◽  
pp. 861-867 ◽  
Author(s):  
Monika Milian ◽  
Philipp Teufel ◽  
Juergen Honegger ◽  
Baptist Gallwitz ◽  
Guenter Schnauder ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cushing’S Disease ◽  
Normative Data ◽  
Healthy People ◽  
Cushing's Disease ◽  
Quality Of Life Inventory ◽  
Life Inventory

scholarly journals Tools used for evaluation of Brazilian children's quality of life

2014 ◽  
Vol 32 (2) ◽  
pp. 272-278 ◽  
Author(s):  
João Gabriel S. Souza ◽  
Marcela Antunes Pamponet ◽  
Tamirys Caroline S. Souza ◽  
Alessandra Ribeiro Pereira ◽  
Andrey George S. Souza ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Cultural Diversity ◽  
Qualité De Vie ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Language And Culture ◽  
Quality Of Life Inventory ◽  
Life Inventory

OBJECTIVE:To review the available tools to evaluate children's quality of life validated for Brazilian language and culture.DATA SOURCES: Search of scientific articles in Medline, Lilacs and SciELO databases using the combination of descriptors "quality of life", "child" and "questionnaires" in Portuguese and English.DATA SYNTHESIS: Among the tools designed to assess children's quality of life validated for the Brazilian language and culture, the Auto questionnaire Qualité de Vie Enfant Imagé (AUQEI), the Child Health Questionnaire - Parent Form 50 (CHQ-PF50), the Pediatric Quality of Life Inventory (PedsQL(tm))version 4.0 and the Kidscreen-52 are highlighted. Some tools do not include all range of ages and some lack domains that are currently considered relevant in the context of childhood, such as bullying. Moreover, due to the cultural diversity of Brazil, it may be necessary to adapt some instruments or to validate other tools.CONCLUSIONS: There are validated instruments to evaluate children's quality of life in Brazil. However, the validation or the adaptation of other international tools have to be considered in order to overcome current deficiencies

Rasch Analysis of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales Administered to Patients With Duchenne Muscular Dystrophy

2021 ◽  
Vol 24 (10) ◽  
pp. 1490-1498
Author(s):  
Erik Landfeldt ◽  
Joel Iff ◽  
Erik Henricson ◽  
V. Vishwanathan ◽  
S. Chidambaranathan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Rasch Analysis ◽  
Quality Of Life Inventory ◽  
Life Inventory
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