Balance artistry: The healthy parent's role in the family when the other parent is in the palliative phase of cancer — Challenges and coping in parenting young children

2013 ◽  
Vol 12 (4) ◽  
pp. 317-329 ◽  
Author(s):  
Trude Aamotsmo ◽  
Kari E. Bugge
Keyword(s):  
Young Children ◽  
Advanced Cancer ◽  
Family Members ◽  
Eligibility Criteria ◽  
Literature Searches ◽  
The Family ◽  
Young Family ◽  
Need For Support ◽  
Palliative Phase ◽  
And Coping

AbstractObjectives:The aim of this review was to provide a systematic overview of knowledge on how advanced cancer in a parent impacts the healthy parent's role in a family with children aged 6–12 years, and the types of help that they require in order to cope. Despite the large number of families living with a parent affected by cancer, the literature is limited concerning the needs and outcomes for the healthy parents and their need for support in managing their children's needs, when the partner is seriously ill or is in the palliative phase of cancer.Method:Comprehensive literature searches were undertaken by systematically searching for qualitative articles published during the period 1989–2009. The quality assessment was evaluated using a predefined “checklist to assess qualitative research.”Results:Seven articles met our eligibility criteria. Four distinct themes emerged that describe the healthy parent's role in the family, whose life is now characterized by uncertainty and who is attempting to maintain a balance between the needs of their children, the patient, and themselves: (1) new roles without a script, (2) attempting to maintain a safe and normal life, (3) feeling alone even within the family, and (4) support to help young family members.Significance of results:The present review provides new knowledge and insight into how healthy parents manage the challenges in parenting young children, coping with their everyday lives, and taking on new roles when their partner has advanced cancer or is dying. The healthy parent cannot balance the needs of all family members. To reach the goals of palliative care, nurses and other health professionals are encouraged to offer the patient, the healthy parent, and the children practical and emotional support.

scholarly journals Caregiver reactions and social provisions among family members caring for home-dwelling patients with cancer in the palliative phase: A cross-sectional study

2019 ◽  
Vol 7 (4) ◽  
pp. 1
Author(s):  
Marianne Fjose ◽  
Grethe Eilertsen ◽  
Marit Kirkevold ◽  
Ellen K. Grov
Keyword(s):  
Older Adult ◽  
Advanced Cancer ◽  
Family Caregiver ◽  
Family Members ◽  
Adult Patients ◽  
Patients With Cancer ◽  
The Family ◽  
Palliative Phase ◽  
The Impact ◽  
Social Provisions

Objective: Studies focusing on the impact of caregiving for older adult home-dwelling patients with cancer in the palliative phase, particularly the burdens on different family caregiver groups, are limited. The objective of this study was to assess and compare caregiver reactions and social provisions among different family caregiver groups in Norway.Methods: The sample consisted of 58 family members caring for 26 home-dwelling older adult patients with advanced cancer. The Caregiver Reaction Assessment and Social Provisions Scale were used to assess the caregiver reactions and social support, respectively. The analyses were performed using descriptive statistics.Results: Significant differences were revealed between the family caregiver groups in the following three dimensions of the Caregiver Reaction Assessment: impact on schedule, lack of family support and impact on health. Significant differences were revealed between the family caregiver groups in the following two dimensions of the Social Provisions Scale: nurturance and attachment.Conclusions: In our study, children and children-in-law caring for widowed patients and spouses were the most vulnerable family caregivers. We recommend assessing the caregiver situation of all available family members caring for older adult patients with advanced cancer to identify the most vulnerable caregivers.

scholarly journals Family caregivers’ expectations and needs in Critical Care Units

2021 ◽  
Vol 4 (2) ◽  
pp. 87-94
Author(s):  
Asma Khalil ◽  
Raisa Begum Gul
Keyword(s):  
Critical Care ◽  
Life Experience ◽  
Tertiary Care ◽  
Family Members ◽  
Structured Interview ◽  
Critical Care Units ◽  
Content Analysis Method ◽  
The Family ◽  
Need For Support ◽  
The Cost

Introduction: Patient admission into the critical care unit is usually an unpleasant and unexpected life experience for the family members, and unusual for family members to cope with stress and anxiety during their hospital stay.  Purpose: This study aimed to explore the expectations and needs of family members of the patients in critical care units at two tertiary care hospitals in Islamabad. Methodology: An exploratory descriptive design was used to address the study questions. Using purposive sampling, 14 family members were individually interviewed through a semi- structured interview guide. A conventional content analysis method was used to analyze the data through which categories and sub-categories were identified. Findings: The data analysis revealed three roles of the family members, which included assistance in physical care, facilitator in the provision of treatment and the decision maker. The participants expressed that their needs for information and assurance were being met to some extent; however, their need for support and comfort were not. Although the physical facilities for meeting the comfort were available in private hospital, it did not match the family members’ expectations. Conclusion: This study revealed that despite some similarities in the role and needs, the expectations and satisfaction of the family members is linked to their awareness of the healthcare system as well as the cost of the obtained services. The suggestions of the family members are implementable to improve their experiences and satisfaction in critical care units, which can enable them to perform their roles better. 

scholarly journals The Effectiveness of Family Communication Strategies for Family Members with Health Problems: A Systematic Review

2020 ◽  
Vol 1 (2) ◽  
pp. 69-78
Author(s):  
Siti Riskika ◽  
Melinda Restu Pertiwi ◽  
Nessy Anggun Primasari ◽  
Niswa Salamung
Keyword(s):  
Family Life ◽  
Health Workers ◽  
Healing Process ◽  
Family Members ◽  
Physical Contact ◽  
Hospital Environment ◽  
Open Communication ◽  
Eligibility Criteria ◽  
Good Communication ◽  
The Family

Introduction: Many things are done by a person to get peace in his life, but sometimes someone does not realize the importance of interacting with other people, in this case communication. Communication is very crucial in life, especially in family life. Someone who is experiencing illness also needs clear communication to help the healing process, be it communication with family or communication with health workers. Method: The literature search was carried out by looking for literature studies in Scopus and in ScienceDirect with the theme of communication in the family. Results: After applying the eligibility criteria in the review, the 15 studies that had been obtained were included. The 15 studies, it shows that the communication provided by the family to other family members is very important in supporting the recovery of a sick family member, even a baby who is sick will gradually improve if he gets good communication from his mother, in the form of communication with physical contact. and attachment. The study of communication is important considering that many do not understand that communication is very important in life. Effective and open communication is also one of the keys to achieving a harmonious life in the family. Conclusion: Effective and open communication is important to apply, especially in family life, and also in the hospital environment, good communication between health workers, patients and families will help heal patients who are experiencing illness

Family Problem Solving

RAINBOW ◽  
2017 ◽  
pp. 77-80
Author(s):  
Amy E. West ◽  
Sally M. Weinstein ◽  
Mani N. Pavuluri
Keyword(s):  
Problem Solving ◽  
Family Members ◽  
Treatment Protocol ◽  
Family Plan ◽  
Family Problem ◽  
The Family ◽  
Common Goals ◽  
Positive Feelings ◽  
And Coping ◽  
Difficult Situations

Session 9 of the RAINBOW treatment protocol focuses on improving family problem-solving and coping (ingredient O: Oh, how do we solve this problem? of RAINBOW), and is conducted with the parent/caregiver(s), child, and siblings. It is important for all family members to have opportunities to talk about their experiences and to have that experience respected by the family. The therapist works with the family to improve interactions at home by problem-solving difficult situations and developing a family plan to minimize behavioral escalation once it occurs. In addition, the session aims to foster affiliation among family members through emphasizing shared experiences, positive feelings, and common goals.

scholarly journals Helping Families Affected by Depression: Incorporating Prosocial and Caregiving Literature

2016 ◽  
Vol 9 (12) ◽  
pp. 23 ◽  
Author(s):  
Magdalena Cismaru ◽  
Audrey Le Pioufle
Keyword(s):  
Family Members ◽  
Knowledge And Skills ◽  
Formal Evaluation ◽  
Essential Components ◽  
The Family ◽  
Determining Factors ◽  
The Face ◽  
New Perspective ◽  
Social Marketing Campaigns ◽  
And Coping

<p>In this study, we use prosocial and caregiving literature to strengthen the family section of anti-depression campaigns. We suggest that the addition of the prosocial and caregiving insights bring a new perspective on depression caregiving of family members that goes beyond a mere description of the family’s reactions and coping abilities. Built on essential components such as empathy, knowledge and skills instead of fear or anxiety, the development of a specific theoretical framework for designers of anti-depression campaigns targeting people caring for family members suffering from depression increases our understanding of family member behavior as caregivers. It provides families with a comprehensive tool that includes motivational and determining factors in one’s will and ability to deliver appropriate help in the face of family illness. Specific recommendations for designers of social marketing campaigns are provided. In addition, we exemplify how an anti-depression campaign targeting family members of depressed people is consistent with the prosocial and caregiving literature, while waiting for a formal evaluation of the effectiveness of the model presented in this article.</p>

scholarly journals Family Support Related to Information, Comfort, Economy and Spiritual in Preeclamptic Pregnancy Care: Qualitative Exploration

2021 ◽  
Vol 12 (1) ◽  
pp. 42-52
Author(s):  
Uswatun Insani ◽  
Evi Supriatun
Keyword(s):  
Pregnant Women ◽  
Information Needs ◽  
Health Workers ◽  
Family Members ◽  
Spiritual Needs ◽  
Family Needs ◽  
Pregnancy Care ◽  
Surrounding Environment ◽  
The Family ◽  
Need For Support

Introduction: Preeclampsia is emergencies in obstetrics, where pregnant women experience health conditions that can be life-threatening and can occur during pregnancy, natal and post-natal. If this obstetric emergency is not treated immediately, it can result in death the mother and also the fetus. Understanding care needs of pregnant with preeclampsia is very important for families because most pregnant women and their families lack understanding and information about high-risk pregnancy care for this disease. Objectives: This research aims to explore the needs of families in the care of preeclampsia. Methods: This research used qualitative descriptive to obtain answers related to individual opinions, responses and perceptions with exploring family needs for care pregnant with preeclampsia. Results: The results of this research there are seven themes related to family needs in pregnancy care with preeclampsia, namely: 1) Description of family knowledge about pregnant with preeclampsia, 2) Information needs, 3) Comfort needs, 4) Economic / financial needs, 5) Spiritual needs, 6) Needs for support from other family members, 7) Need for support from health workers. Conclusions: The importance of involvement of the family and surrounding environment, as a source of strength for pregnant with preeclampsia allows better care for mothers, their babies and reduces the consequences of advanced preeclampsia. Health workers are expected to be able to involve families in the care of pregnant women with preeclampsia as a promotional, preventive and curative effort. 1) Description of family knowledge about pregnant with preeclampsia, 2) Information needs, 3) Comfort needs, 4) Economic / financial needs, 5) Spiritual needs, 6) Needs for support from other family members, 7) Need for support from health workers. Conclusions: The importance of involvement of the family and surrounding environment, as a source of strength for pregnant with preeclampsia allows better care for mothers, their babies and reduces the consequences of advanced preeclampsia. Health workers are expected to be able to involve families in the care of pregnant women with preeclampsia as a promotional, preventive and curative effort. 1) Description of family knowledge about pregnant with preeclampsia, 2) Information needs, 3) Comfort needs, 4) Economic / financial needs, 5) Spiritual needs, 6) Needs for support from other family members, 7) Need for support from health workers. Conclusions: The importance of involvement of the family and surrounding environment, as a source of strength for pregnant with preeclampsia allows better care for mothers, their babies and reduces the consequences of advanced preeclampsia. Health workers are expected to be able to involve families in the care of pregnant women with preeclampsia as a promotional, preventive and curative effort.

Creating communicative opportunity: The supportive benefits of legacy building for families of advanced cancer patients.

2014 ◽  
Vol 32 (31_suppl) ◽  
pp. 230-230
Author(s):  
Jennifer Kim Bernat ◽  
Paul R. Helft ◽  
Laura R. Wilhelm ◽  
Karen Schmidt ◽  
Shelley A. Johns
Keyword(s):  
Cancer Patients ◽  
Advanced Cancer ◽  
Family Members ◽  
Terminally Ill ◽  
Future Generations ◽  
Future Research ◽  
Advanced Cancer Patients ◽  
Great Loss ◽  
The Family ◽  
New Knowledge

230 Background: Being diagnosed with advanced cancer is a painful reality that impacts entire families. Families face the challenge of great loss and can regret conversations left unspoken. Dignity therapy (DT) is an empirically supported intervention that gives families communicative opportunity. During DT, terminally ill patients engage in legacy building and create a written project containing their meaningful memories and values. This project is given to the family, succeeding the person in death and providing continuity to those who are left behind. We developed a narrative intervention based on DT that used a novel web portal for project dissemination. This study qualitatively explores the family’s reactions to legacy building to learn about its potential for future bereavement support. Methods: Semi-structured phone interviews (20-30 minutes) with family members (n=7) of terminally ill cancer patients were completed approximately one week after receiving the legacy project. Recipients were spouses (n=4), siblings (n=2), or an adult child (n=1). Interviews were coded using conventional content analysis and an open-coding strategy. Themes were recorded as they emerged. Results: Three communication themes emerged from the data. Legacy building: (1) facilitates conversation; (2) creates new knowledge and understanding; and (3) leaves lasting communication for future generations. The family members felt overall communication improved before the patient died, and they were able to discuss the terminal nature of their loved one’s illness. New knowledge was communicated in the project, which sometimes led to further understanding of personal life events. Also, the project was viewed as a family heirloom to be bequeathed to future generations. All family members stated they would recommend legacy building to others. Conclusions: This study adds the unique impact of communication to the literature on the supportive benefit of DT for families of advanced cancer patients. Future research should investigate and quantitatively assess bereavement outcomes for families over time, as well as the direct impact these outcomes have on family members’ quality of life.

scholarly journals Secondary attack rates of COVID-19 in Norwegian families: a nation-wide register-based study

2021 ◽  
Author(s):  
Kjetil Telle ◽  
Silje B. Jørgensen ◽  
Rannveig Hart ◽  
Margrethe Greve-Isdahl ◽  
Oliver Kacelnik
Keyword(s):  
Young Children ◽  
Index Case ◽  
Family Members ◽  
Age Group ◽  
Older Children ◽  
Index Child ◽  
Individual Level ◽  
The Family ◽  
Index Cases ◽  
Index Family

AbstractTo characterize the family index case for detected SARS-CoV-2 and describe testing and secondary attack rates in the family, we used individual-level administrative data of all families and all PCR tests for SARS-CoV-2 in Norway in 2020. All families with at least one parent and one child below the age of 20 who lived at the same address (N = 662,582), where at least one member, i.e. the index case, tested positive for SARS-CoV-2 in 2020, were included. Secondary attack rates (SAR7) were defined as the share of non-index family members with a positive PCR test within 7 days after the date when the index case tested positive. SARs were calculated separately for parent- and child-index cases, and for parent- and child-secondary cases. We identified 7548 families with an index case, comprising 26,991 individuals (12,184 parents, 14,808 children). The index was a parent in 66% of the cases. Among index children, 42% were in the age group 17–20 and only 8% in the age group 0–6. When the index was a parent, SAR7 was 24% (95% CI 24–25), whilst SAR7 was 14% (95% CI 13–15) when the index was a child. However, SAR7 was 24% (95% CI 20–28) when the index was a child aged 0–6 years and declined with increasing age of the index child. SAR7 from index parent to other parent was 35% (95% CI 33–36), and from index child to other children 12% (95% CI 11–13). SAR7 from index child aged 0–6 to parents was 27% (95% CI 22–33). The percent of non-index family members tested within 7 days after the index case, increased from about 20% in April to 80% in December, however, SAR7 stabilized at about 20% from May. We conclude that parents and older children are most often index cases for SARS-CoV-2 in families in Norway, while parents and young children more often transmit the virus within the family. This study suggests that whilst the absolute infection numbers are low for young children because of their low introduction rate, when infected, young children and parents transmit the virus to the same extent within the family.

scholarly journals Secondary Attack Rates of COVID-19 in Norwegian Families: A Nation-Wide Register-Based Study

2021 ◽  
Author(s):  
Kjetil Telle ◽  
Silje B. Jørgensen ◽  
Rannveig Hart ◽  
Margrethe Greve-Isdahl ◽  
Oliver Kacelnik
Keyword(s):  
Young Children ◽  
Index Case ◽  
Family Members ◽  
Age Group ◽  
Older Children ◽  
Index Child ◽  
Individual Level ◽  
The Family ◽  
Index Cases ◽  
Index Family

Abstract To characterize the family index case for detected SARS-CoV-2 and describe testing and secondary attack rates in the family, we used individual-level administrative data of all families and all PCR tests for SARS-CoV-2 in Norway in 2020. All families with at least one parent and one child below the age of 20 who lived at the same address (N=662 582), where at least one member, i.e. the index case, tested positive for SARS-CoV-2 in 2020, were included. Secondary attack rates (SAR7) were defined as the share of non-index family members with a positive PCR test within seven days after the date when the index case tested positive. SARs were calculated separately for parent- and child-index cases, and for parent- and child-secondary cases. We identified 7548 families with an index case, comprising 26 991 individuals (12184 parents, 14808 children). The index was a parent in 66% of the cases. Among index children, 42% were in the age group 17-20 and only 8% in the age group 0-6. When the index was a parent, SAR7 was 24% (95%CI 24 to 25), whilst SAR7 was 14% (95%CI 13 to 15) when the index was a child. However, SAR7 was 24% (95%CI 20 to 28) when the index was a child aged 0-6 years and declined with increasing age of the index child. SAR7 from index parent to other parent was 35% (95%CI 33 to 36), and from index child to other children 12% (95%CI 11 to 13). SAR7 from index child aged 0-6 to parents was 27% (95%CI 22 to 33). The percent of non-index family members tested within 7 days after the index case, increased from about 20% in April to 80% in December, however, SAR7 stabilized at about 20% from May. We conclude that parents and older children are most often index cases for SARS-CoV-2 in families in Norway, while parents and young children more often transmit the virus within the family. This study suggests that whilst the absolute infection numbers are low for young children because of their low introduction rate, when infected, young children and parents transmit the virus to the same extent within the family.

scholarly journals Improving Health Services Affecting Coping Mechanism of the Family of Skizofrenia Patients

2019 ◽  
pp. 26-29
Author(s):  
Sugeng Mashudi ◽  
Ah. Yusuf ◽  
Rika Subarniati Triyoga
Keyword(s):  
Health Services ◽  
Family Members ◽  
Coping Mechanisms ◽  
Coping Mechanism ◽  
Family Carers ◽  
Family Coping ◽  
Service Factor ◽  
The Family ◽  
And Coping ◽  
Service Factors

Aim: This study aims to determine the effect of health services on coping mechanisms of families with schizophrenia. Methode: The sample consisted of 260 family carers of individuals with schizophrenia in Ponorogo, East Java, Indonesia. Caregivers of families completed filling in the service factor questionnaire and coping mechanism questionnaire. Results: Community Value for Service Factor 0.662 and Family Coping 0.670 which means valid and strong. Community Value for Service Factor 0.853 and Family Coping 0.800 means Reliability. T-Statistics value of 0.205, which means there is an influence between service factors on family coping. Conclusiaon: Research on improving health services for coping mechanisms in family members of individuals with schizophrenia will help design interventions to improve coping mechanisms.

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