“Orientation and recognition in contemporary illness narratives”

Prose Studies ◽  
2021 ◽  
pp. 1-15
Author(s):  
Rosalia Baena
Keyword(s):  
Illness Narratives

What Can Narrative Theory Learn from Illness Narratives?

2006 ◽  
Vol 25 (2) ◽  
pp. 241-254 ◽  
Author(s):  
Shlomith. Rimmon-Kenan
Keyword(s):  
Narrative Theory ◽  
Illness Narratives

scholarly journals Personal Illness Narratives: Using Reflective Writing to Teach Empathy

2004 ◽  
Vol 79 (4) ◽  
pp. 351-356 ◽  
Author(s):  
Sayantani DasGupta ◽  
Rita Charon
Keyword(s):  
Illness Narratives ◽  
Reflective Writing

scholarly journals ‘Making the Invisible Visible’: an audience response to an art installation representing the complexity of congenital heart disease and heart transplantation

2018 ◽  
Vol 45 (4) ◽  
pp. 399-405 ◽  
Author(s):  
Giovanni Biglino ◽  
Sofie Layton ◽  
Matthew Lee ◽  
Froso Sophocleous ◽  
Susannah Hall ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Heart Transplantation ◽  
Congenital Heart ◽  
Illness Narratives ◽  
Congenital Defects ◽  
Art Installation ◽  
Arts And Health ◽  
The Voice ◽  
The Invisible

The arts can aid the exploration of individual and collective illness narratives, with empowering effects on both patients and caregivers. The artist, partly acting as conduit, can translate and re-present illness experiences into artwork. But how are these translated experiences received by the viewer—and specifically, how does an audience respond to an art installation themed around paediatric heart transplantation and congenital heart disease? The installation, created by British artist Sofie Layton and titled Making the Invisible Visible, was presented at an arts-and-health event. The piece comprised three-dimensional printed medical models of hearts with different congenital defects displayed under bell jars on a stainless steel table reminiscent of the surgical theatre, surrounded by hospital screens. The installation included a soundscape, where the voice of a mother recounting the journey of her son going through heart transplantation was interwoven with the voice of the artist reading medical terminology. A two-part survey was administered to capture viewers’ expectations and their response to the piece. Participants (n=125) expected to acquire new knowledge around heart disease, get a glimpse of patients’ experiences and be surprised by the work, while after viewing the piece they mostly felt empathy, surprise, emotion and, for some, a degree of anxiety. Viewers found the installation more effective in communicating the experience of heart transplantation than in depicting the complexity of cardiovascular anatomy (p<0.001, z=7.56). Finally, analysis of open-ended feedback highlighted the intimacy of the installation and the privilege viewers felt in sharing a story, particularly in relation to the soundscape, where the connection to the narrative in the piece was reportedly strengthened by the use of sound. In conclusion, an immersive installation including accurate medical details and real stories narrated by patients can lead to an empathic response and an appreciation of the value of illness narratives.

Illness Narratives by the Poor

Ill Composed ◽  
2015 ◽  
pp. 159-179
Author(s):  
Olivia Weisser
Keyword(s):  
Illness Narratives ◽  
The Poor

scholarly journals Håp og livsmot i sykdomsfortellinger etter hjerneslag

2019 ◽  
Vol 15 (2) ◽  
pp. 16
Author(s):  
Gabriele Kitzmüller
Keyword(s):  
Illness Narratives ◽  
Loss Of Control ◽  
Important Prerequisite ◽  
Attitudes And Practices ◽  
Self Image ◽  
The Future ◽  
Humanistic Knowledge ◽  
Loving Relationship

Hope and life courage in illness narratives after stroke This essay illuminates the meaning of hope and life courage in the narratives of Tomas and Maria, a couple who had experienced the life changing consequences of Maria’s stroke. Hope is supported by the couple’s strong and loving relationship and by empathy and caring in their relationships with professional caregivers. In this way, the relational component of hope is revealed as the most important prerequisite for maintaining hope. The analysis demonstrates that life courage and hope are strongly needed for trust in the future and rehabilitation efforts. However, careless and unprofessional attitudes and practices of clinicians may lead to loss of control, poorer self-image and hopelessness. To support the hope of patients and relatives, clinicians must show caring attitudes and use both medical and humanistic knowledge. They should not devalue the phenomenon of hope as unrealistic.

scholarly journals Biographical value: towards a conceptualisation of the commodification of illness narratives in contemporary healthcare

2013 ◽  
Vol 35 (6) ◽  
pp. 891-905 ◽  
Author(s):  
Fadhila Mazanderani ◽  
Louise Locock ◽  
John Powell
Keyword(s):  
Illness Narratives

Not Playing Around: Games in Graphic Illness Narratives

2018 ◽  
Vol 36 (1) ◽  
pp. 230-256 ◽  
Author(s):  
Nancy Pedri ◽  
Helene Staveley
Keyword(s):  
Illness Narratives

scholarly journals Illness narratives online

Elore ◽  
2010 ◽  
Vol 17 (2) ◽  
Author(s):  
Piret Paal
Keyword(s):  
Illness Narratives
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