Relationship continuity and person-centred care: An exploratory mixed-methods investigation of spousal partners’ responses to the challenging care needs of those with acquired brain injury

AbstractObjectives:The aim of this article is to describe the characteristics, needs and preferences of people under 50 with an acquired brain injury (ABI) living in residential aged care in Victoria and examine implications for service development.Participants:Sixty-one people under 50 with an ABI living in residential aged care in the state of Victoria.Measures:Care and Needs Scale, Community Integration Questionnaire, Overt Behaviour Scale, Health of the Nation Outcome Scale — ABI Version, Role Checklist, Resident Choice Scale.Results:The younger people with ABI in this study were a diverse group with a complex range of health and support needs that were not being adequately met within residential aged care. Many people (44%) required the highest level of support, indicating they could not be left alone while 26% could be left for part of the day and overnight. Most people (81%) and their support networks indicated they would like to explore moving out from residential aged care into community accommodation settings.Conclusions:This article provides clear direction for the development of services to meet the care needs of this group, to enable them to participate in the life of the community and to pursue a lifestyle of choice.

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Diurnal cortisol and coping responses in close relatives of persons with acquired brain injury: A longitudinal mixed methods study

Brain Injury ◽

10.3109/02699051003789211 ◽

2010 ◽

Vol 24 (6) ◽

pp. 893-903 ◽

Cited By ~ 9

Author(s):

Julie M. Turner-Cobb ◽

Jenny Palmer ◽

D. Aronson ◽

Louise Russell ◽

Stephanie Purnell ◽

...

Keyword(s):

Mixed Methods ◽

Brain Injury ◽

Acquired Brain Injury ◽

Mixed Methods Study ◽

Diurnal Cortisol ◽

Coping Responses ◽

Close Relatives ◽

And Coping

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Birmingham Relationship Continuity Measure--Acquired Brain Injury

PsycTESTS Dataset ◽

10.1037/t79144-000 ◽

2020 ◽

Author(s):

Natasha Yasmin ◽

Hayley S. Keeble ◽

Gerard A. Riley

Keyword(s):

Brain Injury ◽

Acquired Brain Injury ◽

Relationship Continuity

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Partners’ experiences of relationship continuity in acquired brain injury

Cogent Psychology ◽

10.1080/23311908.2017.1380891 ◽

2017 ◽

Vol 4 (1) ◽

pp. 1380891 ◽

Cited By ~ 7

Author(s):

Darrelle Villa ◽

Gerard A. Riley ◽

Peter Walla

Keyword(s):

Brain Injury ◽

Acquired Brain Injury ◽

Relationship Continuity

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The experience and acceptability of smartphone reminder app training for people with acquired brain injury: a mixed methods study

Neuropsychological Rehabilitation ◽

10.1080/09602011.2021.1879875 ◽

2021 ◽

pp. 1-28

Author(s):

Diana Ramirez-Hernandez ◽

Renerus J. Stolwyk ◽

Jodie Chapman ◽

Dana Wong

Keyword(s):

Mixed Methods ◽

Brain Injury ◽

Acquired Brain Injury ◽

Mixed Methods Study

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Training-the-Trainer on Assistive Technology for Cognition (ATC): Current Practices

Perspectives on Neurophysiology and Neurogenic Speech and Language Disorders ◽

10.1044/nnsld23.2.90 ◽

2013 ◽

Vol 23 (2) ◽

pp. 90-94 ◽

Cited By ~ 2

Author(s):

Laurie Ehlhardt Powell ◽

Tracey Wallace ◽

Michelle ranae Wild

Keyword(s):

Brain Injury ◽

Assistive Technology ◽

Acquired Brain Injury ◽

Online Training ◽

Evidence Based ◽

Train The Trainer ◽

Rehabilitation Professionals ◽

Remote Locations ◽

Training Package ◽

And Training

Research shows that if clinicians are to deliver effective, evidence-based assistive technology for cognition (ATC) services to clients with acquired brain injury (ABI), they first need opportunities to gain knowledge and experience with ATC assessment and training practices (O'Neil-Pirozzi, Kendrick, Goldstein, & Glenn, 2004). This article describes three examples of train the trainer materials and programs to address this need: (a) a toolkit for trainers to learn more about assessing and training ATC; (b) a comprehensive, trans-disciplinary program for training staff to provide ATC services in a metropolitan area; and (c) an overview of an on-site/online training package for rehabilitation professionals working with individuals with ABI in remote locations.

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