South African HIV/AIDS service providers’ perceptions of participatory decision making and empowerment: Exploring the role of power distance

Abstract As individuals are living longer, in many cases with chronic diseases, there is an increased focus on end-of-life (EOL) planning and decision making. This includes a broad spectrum of choices including advance care planning (ACP) and turning to palliative care or hospice care. Although there has been an increase in palliative and hospice care enrollment and ACP engagement over the past decade, participation remains low for certain subgroups of the population. The purpose of this symposium is to offer insight into reasons for these varying rates of engagement by exploring determinants and barriers to EOL decision making and planning and by examining caregiver knowledge of EOL decision making and planning from the service provider perspective. The first three studies examine various types of influences in EOL decision making and planning. Inoue and colleagues explore factors associated with the length of hospice stay, and Gaines and colleagues examine the impact of environmental characteristics in ACP. Ornstein and colleagues use Denmark registry data to assess the role of kinlessness at the time of death in EOL decision making and healthcare utilization. The final presentation by Noh and colleagues examines how service providers in rural areas perceive community residents’ knowledge of ACP and palliative care. The discussion following these presentations will compare findings across different forms of EOL decision making and planning, consider the impact of the varying methodological approaches used, and highlight implications of these works for potential interventions and policies related to EOL decision making and planning.

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A Heuristic Framework for Understanding the Role of Participatory Decision Making in Community-Based Non-Profits

American Journal of Community Psychology ◽

10.1007/s10464-010-9396-8 ◽

2011 ◽

Vol 47 (3-4) ◽

pp. 236-252 ◽

Cited By ~ 10

Author(s):

Kimberly D. Bess ◽

Douglas D. Perkins ◽

Daniel G. Cooper ◽

Diana L. Jones

Keyword(s):

Decision Making ◽

Community Based ◽

Participatory Decision Making

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HIV/AIDS and the South African Bill of Rights, with specific reference to the approach and role of the courts

African Journal of AIDS Research ◽

10.2989/16085900409490325 ◽

2004 ◽

Vol 3 (2) ◽

pp. 113-119

Author(s):

John C Mubangizi

Keyword(s):

South African ◽

Specific Reference ◽

Bill Of Rights ◽

The South ◽

Hiv Aids

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A necessary dialogue: a South African case study exploring the role of national HRD in HIV/AIDS non-government organizations

Human Resource Development International ◽

10.1080/13678861003703708 ◽

2010 ◽

Vol 13 (2) ◽

pp. 165-183 ◽

Cited By ~ 5

Author(s):

Melony H. Johnson ◽

Kenneth R. Bartlett ◽

Peter Cunningham ◽

Susan A. Lynham ◽

Jill Von der Marwitz

Keyword(s):

South African ◽

Government Organizations ◽

Hiv Aids

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“Silent Voices”: A Description of Views and Attitudes of Health Professionals towards Reproduction by HIV Positive People

International Scholarly Research Notices ◽

10.1155/2014/205872 ◽

2014 ◽

Vol 2014 ◽

pp. 1-6

Author(s):

Vezumuzi Ndlovu

Keyword(s):

Decision Making ◽

Health Professionals ◽

Opportunistic Infections ◽

Negative Attitude ◽

Hiv Positive ◽

Decision Making Process ◽

Depth Interviews ◽

Hiv Aids

Objective. The role of health professionals in the decision making process of patients is usually heard or seen from the perspective of the patients. This paper gives the usually silent and invisible health professionals voice and visibility. It describes their views and attitudes towards reproduction by couples who are HIV positive and attempts to understand their perspectives. Methods. In-depth interviews were conducted with twelve health professionals at an opportunistic infections clinic. Transcribed interviews were analysed using the grounded approach to identify patterns and themes concerning views and attitudes of health professionals towards reproduction by HIV positive people. Results. The study found that most health professionals generally had a negative attitude towards childbearing by HIV positive couples. Their views and approaches on the issue were based mainly on biomedical considerations. The main discourses on childbearing that emerged from the study were the conditional choice, the antichildbearing, and the prorights. Conclusion. Most of the health professionals interviewed tend to take a generally negative stance towards reproduction by people with HIV/AIDS. There is a need for a clear set of guidelines for health professionals (HPs) on how to deal with HIV positive people who may desire to reproduce.

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The role of decision-making ability in HIV/AIDS: Impact on prospective memory

Journal of Clinical and Experimental Neuropsychology ◽

10.1080/13803395.2014.935705 ◽

2014 ◽

Vol 36 (7) ◽

pp. 730-741 ◽

Cited By ~ 7

Author(s):

Kelly Coulehan ◽

Desiree Byrd ◽

Alyssa Arentoft ◽

Jennifer Monzones ◽

Armando Fuentes ◽

...

Keyword(s):

Decision Making ◽

Prospective Memory ◽

Hiv Aids

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Sustainable Cities

Urban Environmental Education Review ◽

10.7591/cornell/9781501705823.003.0003 ◽

2017 ◽

Author(s):

Martha C. Monroe ◽

Arjen E. J. Wals ◽

Hiromi Kobori ◽

Johanna Ekne

Keyword(s):

Decision Making ◽

Social Learning ◽

Environmental Education ◽

The Netherlands ◽

Citizen Science ◽

Government Agency ◽

Sustainable Cities ◽

Participatory Decision Making

This chapter presents three cases that demonstrate a variety of interactions between residents and expert leaders in fostering sustainability innovations in cities. It looks at sustainable cities in Sweden, Japan, and the Netherlands, focusing on common principles that may help explain their success as well as the role of environmental education and learning in these efforts. All three examples engage municipal nonprofit and government agency leaders with residents in many different ways. Leaders and residents learn about sustainability as they build skills for participatory decision making. They offer ideas and realize that their contributions matter. The cases have outlived their inception phase and continue to grow and improve their outcomes despite setbacks, changing circumstances, and even opposition. The chapter explains how monitoring the outcomes of such innovations, including through citizen science and social learning, can contribute to their effectiveness.

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