scholarly journals Work and everyday life in a digitalized time: Experiences of people with subjective cognitive difficulties related to neurological disorders

PLoS ONE ◽  
2021 ◽  
Vol 16 (11) ◽  
pp. e0260013
Author(s):  
Monika Lindberg ◽  
Maria Ranner ◽  
Eva Månsson-Lexell ◽  
Lars Jacobsson ◽  
Maria Larsson-Lund
Keyword(s):  
Everyday Life ◽  
Neurological Disorders ◽  
Qualitative Interviews ◽  
Management Strategies ◽  
Working Life ◽  
Full Potential ◽  
Cognitive Difficulties ◽  
Digital Work ◽  
Qualitative Descriptive ◽  
Multiple Case

Introduction Digitalization has changed working life and increased cognitive demands on employees in general. Nevertheless, the consequences for employees with cognitive impairments and subjective cognitive difficulties are to a large extent unexplored. The aim of this study was to explore and describe how employees with subjective cognitive difficulties who are performing digital work tasks experience their vocational situation and how this situation influences their everyday life. Methods A qualitative, descriptive, multiple-case study was designed. Self-reports, assessments and qualitative interviews were used to collect data from the seven participants with neurological disorders. The data were analysed using pattern matching. Findings The analysed data formed four categories conceptualized as “Working to my full potential”, “Working, but it is largely up to me”, “Working at the expense of everyday life” and “Working without known difficulties”, and these categories included one to four subcategories. Conclusion Managing subjective cognitive difficulties in vocational situations and everyday life was challenging in a digitalized working life for participants with neurological disorders. To provide equal access to preventive measures and rehabilitation and a sustainable working life, it is important to investigate the influence of subjective cognitive difficulties systematically on work, everyday life and management strategies in people with neurological disorders in digitalized work.

scholarly journals “With Enthusiasm and Energy throughout the Day”: Promoting a Physically Active Lifestyle in People with Intellectual Disability by Using a Participatory Approach

2021 ◽  
Vol 18 (23) ◽  
pp. 12329
Author(s):  
Antonia Mauro ◽  
Dirk Bruland ◽  
Änne-Dörte Latteck
Keyword(s):  
Physical Activity ◽  
Intellectual Disabilities ◽  
Everyday Life ◽  
Developmental Process ◽  
Qualitative Interviews ◽  
Management Strategies ◽  
Participatory Approach ◽  
Living Environment ◽  
Target Group ◽  
People With Intellectual Disabilities

People with intellectual disabilities have a comparatively low level of physical activity and are affected by associated numerous impairments and diseases. However, target group specific interventions and concepts aiming at sustainable physical activity-related behavior change in everyday life are rare and the needs and perspectives of the target group have hardly been considered so far. Therefore, a target-group oriented intervention was developed. The research and developmental process was characterized by a participatory approach, involving people with intellectual disabilities throughout the whole process. For example, the interview guideline, design of the interview situation and ways of communicating were developed in a participatory manner. Twenty-four qualitative interviews with people with intellectual disabilities were conducted to explore individual physical activity-related experiences and strategies. Individual and contextual influences on physical activity were identified. Interview results were used to conceptualize an intervention that aims at promoting physical activity in the everyday life of people with intellectual disabilities by strengthening their self-management strategies. The intervention was tested in practice and modified based on communicative validation methods. Good acceptance in the long term is also expected, as the intervention takes place in people’s living environment, is socially embedded and builds upon the needs of the target group.

scholarly journals Out of sync: Time management in the lives of young drug users

2015 ◽  
Vol 26 (2) ◽  
pp. 244-264 ◽  
Author(s):  
Margaretha Järvinen ◽  
Signe Ravn
Keyword(s):  
Drug Use ◽  
Everyday Life ◽  
Time Management ◽  
Drug Users ◽  
Qualitative Interviews ◽  
Management Strategies ◽  
Social Identities ◽  
Social Time ◽  
Cyclic Time ◽  
Time Structures

The paper analyzes young cannabis users’ experiences of time from two different perspectives, one looking at how their everyday life is related to social time structures and another looking at their actual time management strategies. The paper shows that intense drug use is a reason behind the interviewees’ underinvolvement in interaction time, institutional time, and cyclic time. Yet, drug use may also be an attempt at solving problems with time management, a strategy that again brings the users further away from the social time structures of society. We identify temporal synchronicity, or rather the lack of this, as a central challenge for the interviewees’ social identities and general feelings of a meaningful everyday life. Further, we argue that the young cannabis users are both social and temporal “outsiders” to society and that new time management strategies are key to reversing this process of social marginalization. The paper is based on qualitative interviews with 30 young cannabis users in outpatient drug treatment in Denmark.

Emotional and cognitive difficulties, help-seeking, and barriers to treatment in neurological disorders.

2018 ◽  
Vol 63 (4) ◽  
pp. 563-574 ◽  
Author(s):  
Milena Gandy ◽  
Eyal Karin ◽  
Vincent J. Fogliati ◽  
Susanne Meares ◽  
Olav Nielssen ◽  
...  
Keyword(s):  
Neurological Disorders ◽  
Help Seeking ◽  
Barriers To Treatment ◽  
Cognitive Difficulties

scholarly journals Paraneoplastic neurological syndromes: clinical presentations and management

2021 ◽  
Vol 14 ◽  
pp. 175628642098532
Author(s):  
Michelle F. Devine ◽  
Naga Kothapalli ◽  
Mahmoud Elkhooly ◽  
Divyanshu Dubey
Keyword(s):  
Patient Outcomes ◽  
Neurological Disorders ◽  
Immune Checkpoint Inhibitor ◽  
Checkpoint Inhibitor ◽  
Management Strategies ◽  
Paraneoplastic Neurological Syndrome ◽  
Paraneoplastic Neurological Syndromes ◽  
Onconeural Antibodies ◽  
Clinical Presentations ◽  
Paraneoplastic Neurological Disorders

We provide an overview of the varied presentations of paraneoplastic neurological syndromes. We also review the onconeural antibodies and their particular oncological and neurological associations. Recognition of these syndromes and their oncological associations is crucial, as early diagnosis and management has been associated with better patient outcomes. Specific management strategies and prognosis vary widely depending on the underlying etiology. An understanding of the relevant clinical details, imaging findings, and other diagnostic information can help tailor treatment approaches. We provide an outline of the diagnostic evaluation and treatment of various paraneoplastic neurological disorders, presenting with central and/or peripheral nervous system involvement. We briefly discuss neurologic immune checkpoint inhibitor-related adverse events, which can occasionally present with paraneoplastic neurological syndrome phenotypes.

scholarly journals Strategi Manajemen Pembentukan Badan Usaha Milik Desa (BUM Desa)

2019 ◽  
Vol 2 (2) ◽  
pp. 183-192
Author(s):  
Eka Nuraini
Keyword(s):  
Human Resources ◽  
Qualitative Methods ◽  
Research Method ◽  
Management Strategies ◽  
Research Activities ◽  
Qualitative Descriptive ◽  
Conducting Research ◽  
The Right ◽  
The Village ◽  
Implementation Of The Strategy

Based on preliminary studies in Air Saga Village, the problems faced by villages to form BUM Desa are lack of ability to map village potentials, it is difficulty to find human resources who will manage BUM Desa, lack of understanding to start establishing BUM Desa, and lack of ability to compile BUM Desa administration.  These problems must be addressed immediately by conducting research activities aimed at formulating management strategies for the formation of BUM Desa, especially in Air Saga Village. The research method uses qualitative methods with the following steps: (1) conducting observations to obtain information about the potential of the village, (2) conducting interviews with village heads and BPD, (3) conducting FGD. The collected data were analyzed using qualitative descriptive techniques. The results showed that an aggressive strategy is the right strategy to form a BUM Desa in Air Saga Village, Tanjungpandan District, Belitung Regency. The implementation of the strategy for establishing BUM Desa must involve village facilitators and be evaluated in each of its activities  

scholarly journals Appscapes in everyday life

2020 ◽  
Vol 36 (69) ◽  
pp. 029-051
Author(s):  
Signe Sophus Lai ◽  
Sofie Flensburg
Keyword(s):  
Everyday Life ◽  
Mobile Apps ◽  
Empirical Studies ◽  
Qualitative Interviews ◽  
Mobile App ◽  
Trade Off ◽  
Online Tracking ◽  
Material Conditions ◽  
Infrastructure Studies ◽  
App Economy

It has long been acknowledged that the use of ‘free’ mobile apps comes at a price,but few empirical studies have looked into this supposed trade-off. This articlecombines qualitative interviews with mappings of infrastructures for dataficationin order to study the implications of mobile app usage from the perspectiveof individual users. It analyses users’ understanding of online tracking, maps theinfrastructural tenets of mobile datafication, and finds a disconnect between whatusers believe happens to their data and the actual data harvesting and distributionmechanisms of their apps. We thereby argue that users’ resigned attitudes shouldbe understood in light of the material conditions of the app economy and, as such,that user and infrastructure studies should join forces in exploring and enhancingusers’ agency, empowerment and emancipation.

“I’m Just Forgetting and I Don’t Know Why”: Exploring How People Living With HIV-Associated Neurocognitive Disorder View, Manage, and Obtain Support for Their Cognitive Difficulties

2018 ◽  
Vol 28 (6) ◽  
pp. 859-872 ◽  
Author(s):  
Alexander R. Terpstra ◽  
Catherine Worthington ◽  
Francisco Ibáñez-Carrasco ◽  
Kelly K. O’Brien ◽  
Aiko Yamamoto ◽  
...  
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Health Care Professionals ◽  
Management Strategies ◽  
Well Being ◽  
People Living With Hiv ◽  
Neurocognitive Disorder ◽  
Cognitive Difficulties ◽  
Hiv Associated Neurocognitive Disorder ◽  
Living With Hiv

HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with community members living with HIV, focused on how cognitive difficulties manifested and progressed, impacted well-being, and were discussed with others. We analyzed interview transcripts using a team-based, thematic approach. Participants described concentration, memory, and multitasking difficulties that fluctuated over time, as well as potential risk factors, management strategies, and psychosocial consequences. They reported they seldom discussed cognitive impairment with health care professionals, and that receiving a HAND diagnosis was validating, informative, yet somewhat disconcerting. Conversations between health care professionals and people living with HIV about HAND may provide opportunities for education, assessment, and support.

Value Creation in Business-to-Business Crowd Sourcing

Crowdsourcing ◽  
2019 ◽  
pp. 1419-1432
Author(s):  
Nina Helander ◽  
Hannu Kärkkäinen ◽  
Jari Jussila
Keyword(s):  
Social Media ◽  
Value Creation ◽  
Knowledge Society ◽  
Future Research ◽  
Full Potential ◽  
Crowd Sourcing ◽  
Multiple Case ◽  
Business To Consumer ◽  
Business To Business

In knowledge society the utilization of social media as a communication channel between people, groups and even companies is increasing. Current innovation and social media research has already shown the potential of crowdsourcing in the business-to-consumer (B2C) markets. The authors argue in this paper, however, that crowdsourcing has a great and yet partly undiscovered potential also in the context of business-to-business (B2B) markets. In order to get the full potential, a more detailed understanding of the logic of value creation in crowdsourcing activities between multiple stakeholders in B2B context is needed. This paper presents an exploratory study that is carried out as an empirical netnography-based multiple case study. The study opens up potential future research avenues by starting the discussion of value creation logic in B2B crowdsourcing. Practical implications are created through cases revealing what kind of value companies have already been able to gain from crowdsourcing in B2B context.

Investigating School-Based Support Teams' Roles in Supporting Children With Cerebral Palsy During the National Lockdown

2021 ◽  
pp. 127-144
Author(s):  
Nkhensani Susan Thuketana
Keyword(s):  
Cerebral Palsy ◽  
Inclusive Education ◽  
Limpopo Province ◽  
Support Teams ◽  
School Based ◽  
Children With Cerebral Palsy ◽  
Qualitative Descriptive ◽  
Multiple Case ◽  
Support Team ◽  
Virus Emergence

The demand for mainstream South African schools to adopt inclusive education research recommendations is rising exponentially. The COVID-19 pandemic effects compound curriculum access difficulties for children with cerebral palsy. In addition, the COVID-19 virus emergence exposed longstanding home-schooling endangerments. As part of a larger study, this chapter is a sequel to a qualitative, descriptive multiple case study interviewing 15 teachers from three schools, three coordinators of the school-based support teams, and the district-based support team coordinators in Limpopo Province. The study drew from Bronfenbrenner's ecological systems, Piaget's cognitive development, and Vygotsky's sociocultural theories to investigate stakeholders' understanding of inclusive education. During the lockdown period, follow-up online interviews with the school-based support team (SBST) identified a continuous fragmentation of IE stakeholders' responsibilities. They recommended a community of practice (CoP) approach that advocated expediting the implementation of recommendations.

scholarly journals Understanding Parents’ Experiences and Information Needs on Pediatric Acute Otitis Media: A Qualitative Study

2018 ◽  
Vol 6 (1) ◽  
pp. 53-61 ◽  
Author(s):  
Salima Meherali ◽  
Alyson Campbell ◽  
Lisa Hartling ◽  
Shannon Scott
Keyword(s):  
Otitis Media ◽  
Information Needs ◽  
Management Strategies ◽  
Acute Otitis Media ◽  
Pediatric Emergency ◽  
Structured Interviews ◽  
Patient Centered ◽  
Satisfaction With Treatment ◽  
Qualitative Descriptive ◽  
Parents Experiences

Background: Acute otitis media (AOM) is the most common pediatric bacterial ear infection, affecting up to 75% of children younger than 5 years. Despite the high incidence of AOM in children, the condition presents a number of challenges to parents. The objectives of this study were to describe parents’ experiences of taking care of a child with AOM and to identify their information needs to manage their child with AOM. Methods: A qualitative, descriptive design was used to gain insight into information needs of parents’ of children with AOM. Participants were recruited from a specialized pediatric emergency department in a major Canadian urban center (Edmonton, Alberta). Individual semi structured interviews were conducted with 16 parents. Results: Seven major themes were identified and described: (1) frequency of AOM, (2) symptoms of AOM experienced by children and parents, (3) AOM symptom management strategies used by parents, (4) parent’s beliefs about AOM, (5) parent’s satisfaction with treatment prescribed by physicians, (6) the effect of AOM on family’s quality of life, and (7) parent’s information needs about AOM. Findings indicate that AOM has considerable negative outcomes for both children and families and that parents would benefit from having more evidence-based resources. Conclusions: This study provides important information around parents’ experiences and information needs for pediatric AOM. Identifying parents’ information needs and developing innovative and communicatively responsive educational approaches for parents are warranted that reflect patient-centered nursing care.

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