scholarly journals Comprehensive Stroke Education Program (CSEP) on Knowledge and Quality of Life among Patients with Stroke and Burden among Caregivers

2019 ◽  
pp. 71-80
Author(s):  
Baminidevi Nagarajan

Stroke is a global health problem. Rehabilitation is a major part of patient care. The statistics on Cerebrovascular Accident (CVA) quoted by world health organization projects that nearly 15 million people suffer from stroke worldwide each year. Of these, 5 million die and another 5 million are permanently disabled. High blood pressure contributes to more than 12.7 million strokes worldwide. Study objectives were to determine the effectiveness of CSEP on knowledge and Quality of Life (QoL) among patients with stroke and to evaluate the effectiveness of CSEP on knowledge and burden among caregivers. This study was conducted at Sri Ramachandra Medical Centre (SRMC), Chennai-600 116. It is a 1675 bedded multi-specialty hospital. The pretest was conducted in neurology wards and the posttest was conducted at neurology OPD. Permission obtained from ethical committee. Randomized controlled trial research method was adopted. Sample size was 170 dyads (patient+caregiver) in those 85 dyads in each group were recruited by lottery method. Following pretest, CSEP was implemented to the study group dyads. Posttests were taken on 30th day, 90th day and 180th day at neurology OPD for both the groups. Comparison of mean scores of knowledge on stroke between the study and control group showed the level of knowledge found to be high among study group patients at p<0.001. The mean scores of ADL in the study group was statistically significant at p<0.05 level. The mean scores of Physical Component Summary (PCS) and Mental Component Summary (MCS) showed statistically significant at p<0.05. Overall mean scores of Stroke Specific Quality of Life (SSQOL) in the study group were found to be significant at p<0.01. Study group caregiver’s knowledge on stroke was statistically significant at p<0.01. The burden mean scores were higher among control group than the study group caregiver.

2017 ◽  
Vol 29 (3) ◽  
pp. 303-310 ◽  
Author(s):  
Daniel Kim-wan Young ◽  
Petrus Yat-nam Ng ◽  
Daphne Cheng

Purpose: This research study aims to evaluate the effectiveness of a psychoeducation group, which is founded on an Eastern approach to health care, in improving the quality of life of Chinese people with mild cognitive impairment (PwMCI). Method: In a randomized controlled trial (RCT), 40 Chinese PwMCI were randomly assigned to either a 10-session psychoeducation group or the control group. Results: A paired sample t test indicated that the treatment group ( n = 18) showed significant improvement in their World Health Organization Quality of Life Measure (WHOQOL) score, while the control group ( n = 22) did not. Moreover, an independent t test showed that the treatment group was more effective than the control group to improve their WHOQOL score. A reduction in the depressive symptoms was related to the improvement in WHOQOL score. Conclusions: This RCT provides evidence to support the feasibility and effectiveness of psychoeducation groups for improving the overall quality of life of PwMCI.


Author(s):  
Rakesh Kumar Paswan ◽  
Brajesh Pushp ◽  
Siddharth Aswal ◽  
Yogesh Motwani

Background: Spirituality is a theme of religion and philosophy, which are Humanities and work on empirical principals. Psychology and psychiatry are developed from philosophy but have scientific attitude. Patient care is a complex issue and needs conversion of both of these principles. Aim: We made an attempt to evaluate that use of spirituality principles in patient’s treatment is helpful or not. Material and methods: Total 510 patients were evaluated. Study group of 260 patients were given spiritual consideration in standard treatment and control group of 250 patients were only given standard treatment. World Health Organization Quality of Life (WHOQOL)-BREF raw score were compared using student t test. Results: We found that there was significantly more improvement in study group as compared to control group in terms of World Health Organization Quality of Life (WHOQOL)-BREF score. Conclusion: We arrived at the conclusion that spiritual consideration gives added improvement in treatment of psychiatric illnesses. We should not ignore spiritual beliefs of patients. Keywords: spirituality, beliefs, psychiatric illness, psychology


2008 ◽  
Vol 66 (2a) ◽  
pp. 163-167 ◽  
Author(s):  
Heloísa Rovere ◽  
Sueli Rossini ◽  
Rubens Reimão

OBJECTIVE: To evaluate the perception of Quality of Life (QL) in Brazilian patients with narcolepsy. METHOD: 40 adult patients aged between 20 and 72 years (mean=41.55; SD=14.50); (28 F; 12M), with the diagnosis of chronic narcolepsy were followed up at the outpatient clinic (Patient Group). The Control Group was composed of 40 adults. The instrument utilized was the World Health Organization Quality of Life (WHOQOL-BREF). RESULTS: The two groups were homogeneous and no difference was found with regards to age, sex, and demographic characteristics. The perception of QL in physical, psychological and social domains showed lower scores in those patients with narcolepsy than in the control group (p<0.05). Concerning physical domain, all the aspects evaluated were significantly impaired, in patient group, including sleep satisfaction (p<0.001); energy for daily activities (p=0.039); capacity to perform activities (p=0.001); and capacity to work (p=0.001). CONCLUSION: The perception of QL showed severe impairment in patients with narcolepsy for physical, psychological and social domains.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Roya Rahimi ◽  
Shirin Hasanpour ◽  
Mojgan. Mirghafourvand ◽  
Khalil Esmaeilpour

Abstract Background Considering the prevalence of infertility in the community and the consequences of failure of infertility treatments on women’s mental health, interventions that can control stress, anxiety and depression in infertile women with a history of IVF failure will be very helpful. This study aimed to determine the effects of hope-oriented group counseling on mental health (primary outcome) and quality of life (QoL) (secondary outcome) of women with failed IVF cycles. Method This randomized controlled trial was conducted on 60 women with failed IVF cycles visiting Infertility Clinic at Al-Zahra Teaching Hospital of Tabriz- Iran. Participants were allocated to the intervention group (n = 30) and control group (n = 30) based on a randomized block design. Hope-oriented group counseling was provided to the intervention group in six 45–60 min sessions (once a week). The control group only received routine care to undergo another IVF cycle. The Depression Anxiety Stress Scale-21 (DASS-21) and the SF-12 Quality of Life Scale were filled out by interviewing the participants before the intervention and one week and one month after the intervention. After intervention 26 participants in each group were included in the analysis. Results There was no significant difference between the intervention and control groups in the socio-demographic profile of participants (P > 0.05). The post-intervention mean score of stress (adjusted mean difference = − 1.7, 95% confidence interval: − 3.2 to − 0.3, P = 0.018) and depression (adjusted mean difference = − 1.3, 95% confidence interval: − 4.7 to − 1.5, P < 0.001) was significantly lower in the intervention group compared to the control. Although the mean anxiety score was lower in the intervention group compared to the control, the difference between them was not statistically significant (adjusted mean difference = − 1.1, 95% confidence interval: − 2.6 to 0.4, P = 0.153). The mean score of QoL was significantly higher in the intervention group than that of the control group (adjusted mean difference = 6.9, 95% confidence interval: 5.1 to 8.8, P < 0.001). Conclusion Hope-oriented group counseling was effective in reducing stress and depression and improving QoL in women with failed IVF cycles. It is recommended to use this counseling approach, along with other methods, to improve the mental health of women with failed IVF cycles. Trial registration TCT Registration Number: TCTR 20191017003, registered on October 17, 2019.


2021 ◽  
Vol 5 (1) ◽  
pp. 39-51
Author(s):  
Anisa Fitriani ◽  
Fuad Nashori ◽  
Indahria Sulistyarini

Penelitian ini bertujuan untuk mengetahui pengaruh pelatihan regulasi emosi untuk meningkatkan kualitas hidup caregiver skizofrenia. Metode yang digunakan adalah kuasi eksperimen dengan pretest-posttest control group design dan teknik pengambilan sampel menggunakan purposive sampling. Subjek terdiri atas dua puluh caregiver laki-laki dan perempuan berusia 47-63 tahun yang dibagi dalam kelompok eksperimen dan kontrol. Metode pengumpulan data menggunakan wawancara, observasi, dan pengukuran kualtias hidup dengan skala World Health Organization of Quality of Life-BREF. Data dianalisis menggunakan anava campuran untuk mengetahui perbedaan kualitas hidup kelompok eksperimen dan kontrol saat prates, paskates, dan tindak lanjut. Hasil penelitian menunjukkan adanya peningkatan yang sangat signifikan pada skor kualitas hidup kelompok eksperimen setelah diberi pelatihan regulasi emosi. Skor kualitas hidup mengalami peningkatan kembali saat pengukuran tindak lanjut, sedangkan pada kelompok kontrol tidak terdapat peningkatan yang signifikan. Hasil tersebut menunjukkan bahwa pelatihan regulasi emosi efektif dalam meningkatkan kualitas hidup caregiver skizofrenia.


2021 ◽  
Vol 15 (3) ◽  
Author(s):  
Supriya Patil ◽  
Yamini Patil ◽  
Sanjay Kumar Patil

Diabetes is a chronic metabolic disorder that disturbs the quality of life (QOL) of patients. Therefore, evaluation of diabetes- related QOL could be a key outcome measure for its management. This study assessed the QOL in type 2 diabetes mellitus (T2DM) patients using the World Health Organization (WHO) quality of life (QOL)˗BREF questionnaire and disease-specific appraisal of diabetes scale (ADS). In this cross-sectional study, 520 T2DM patients were included. Patients’ demographic data, clinical information was collected through interviews, and the WHOQOL-BREF instrument and ADS were used for the QOL of patients. Statistical analysis was performed by using R software (Version 3.6.0). The mean ADS scores were lower in controlled diabetic subjects (18.50±3.08) and higher in uncontrolled diabetic subjects (19.29±2.73) (P<0.05). For WHOQOL-BREF, the mean scores for all the domains (overall general health, physical, psychological, social, and environmental) were significantly higher in controlled diabetic subjects (P<0.001). In addition, the age, duration of diabetes, associated comorbidities, treatment, and HbA1c level of patients showed a highly significant correlation with WHOQOL-BREF (P<0.001). Diabetic patients had poor-to-average QOL. Therefore, public health measures and education of diabetic patients are essential to create more awareness for improving the QOL of T2DM.


2012 ◽  
Vol 27 (2) ◽  
pp. 133-141 ◽  
Author(s):  
Venkatesan Prem ◽  
Ramesh Chandra Sahoo ◽  
Prabha Adhikari

Objective: To compare two breathing exercises (Buteyko and pranayama) with a control group in patients with asthma. Design: Randomized controlled trial. Subjects: One hundred and twenty subjects were randomized to three groups through block randomization. Subjects with an Asthma Quality of Life Questionnaire score <5.5 participated in the study. Setting: Outpatient pulmonary medicine department. Interventions: Subjects in the Buteyko and pranayama groups were trained for 3–5 days and instructed to practise the exercises for 15 minutes twice daily, and for three months duration. The control group underwent routine pharmacological management during the study period. Outcome measures: Asthma Quality of Life Questionnaire, Asthma Control Questionnaire and pulmonary function test. Results: The baseline characteristics were similar in all three groups. Post intervention, the Buteyko group showed better trends of improvement (mean (95% confidence interval), P-value) in total Asthma Quality of Life Questionnaire score than the pranayama (0.47 (–0.008–0.95), P = 0.056) and control groups (0.97 (0.48–1.46), P = 0.0001). In comparison between the pranayama and control groups, pranayama showed significant improvement (0.50 (0.01–0.98), P = 0.042) in total Asthma Quality of Life Questionnaire score. Conclusion: The Buteyko group showed better trends of improvement in quality of life and asthma control than the group performing the pranayama breathing exercise.


2013 ◽  
Vol 04 (03) ◽  
pp. 278-282 ◽  
Author(s):  
Karthik Nagaraj ◽  
Arun B Taly ◽  
Anupam Gupta ◽  
Chandrajit Prasad ◽  
Rita Christopher

ABSTRACTObjective: This prospective study was carried out to observe the prevalence of fatigue in patients with multiple sclerosis (MS) and its effect on quality-of-life (QoL). Study Design and Setting: Prospective observational study in a University Tertiary Research Hospital in India. Patients and Methods: A total of 31 patients (25 females) with definite MS according to McDonald ′s criteria presented in out-patient/admitted in the Department of Neurology (between February 2010 and December 2011) were included in the study. Disease severity was evaluated using the Kurtzke′s expanded disability status scale (EDSS). Fatigue was assessed using Krupp′s fatigue severity scale (FSS). QoL was assessed by the World Health Organization QoL-BREF questionnaire. Results: The mean age of patients was 30.1 ± 9.1 years. The mean age at first symptom was 25.23 ± 6.4 years. The mean number of relapses was 4.7 ± 3.6 in the patients. The mean duration of illness was 4.9 ± 4.4 years. The mean EDSS score was 3.5 ± 2.2. Mean fatigue score was 38.7 ± 18.5 (cut-off value 36 in FSS). The prevalence of fatigue in patients with MS was 58.1% (18/31). MS patients with fatigue were significantly more impaired (P < 0.05) on all QoL domains (i.e., physical, psychosocial, social, and environment) than MS patients without fatigue. Conclusion: Prevalence of fatigue was found to be high in the MS patients in the study. All four domains of QoL were significantly more impaired in the group with fatigue than in those without fatigue.


2017 ◽  
Vol 7 (12) ◽  
pp. 52
Author(s):  
Rasha Ali Ahmed Abdelmowla ◽  
Attyiat Hassan Hussein ◽  
Ahmed Abdelhamaid Shahat ◽  
Hanan Ali Ahmed Abdelmowla ◽  
Medhat Ahmed Abdalla

Background and objective: Renal stones are a common and recurrent condition that requires medical or surgical treatment; all have significant impact on quality of life. The objective of this study was to detect factors affecting quality of life, improve quality of life for patients with renal stones treated by percutaneous nephrolithotomy.Methods: Research design: Prospective randomized controlled trail. Patients and methods: Random sample of 160 patients with renal stones planned for treatment by percutaneous nephrolithotomy at Assiut Urology and Nephrology Hospital were randomized into study and control groups. Study group (80 patients who received nursing interventions and patients education) and control group (80 patients who received routine hospital care). Their age ranged from18-65 years from both sexes. Tools: I Patient assessment sheet, II Rand short form 36 items questionnaire and III Teaching booklet.Results: Study group was showed a good improvement on quality of life after providing nursing interventions and patients education.Conclusions and recommendation: Nursing interventions and patients education for study group had a favorable effect on improving quality of life. Patients with percutaneous nephrolithotomy should receive careful care and education to improve their quality of life.


2015 ◽  
Vol 2015 ◽  
pp. 1-9 ◽  
Author(s):  
Munvar Miya Shaik ◽  
Norul Badriah Hassan ◽  
Huay Lin Tan ◽  
Siew Hua Gan

Background. Disability caused by migraine may be one of the main causes of burden contributing to poor quality of life (QOL) among migraine patients. Thus, this study aimed to measure QOL among migraine sufferers in comparison with healthy controls.Methods. Female diagnosed migraine patients (n= 100) and healthy controls (n=100) completed the Malay version of the World Health Organization QOL Brief (WHOQOL-BREF) questionnaire. Only migraine patients completed the Malay version of the Migraine Disability Assessment questionnaire.Results. Females with migraines had significantly lower total WHOQOL-BREF scores (84.3) than did healthy controls (91.9,P<0.001). Similarly, physical health (23.4 versus 27.7,P<0.001) and psychological health scores (21.7 versus 23.2,P< 0.001) were significantly lower than those for healthy controls. Seventy-three percent of patients experienced severe disability, with significantly higher number of days with headaches (13.8 days/3 months,P< 0.001) and pain scores (7.4,P< 0.013). Furthermore, migraine patients with lower total QOL scores had 1.2 times higher odds of having disability than patients with higher total QOL scores.Conclusions. The present study showed that migraine sufferers experienced significantly lower QOL than the control group from a similar population. Disability was severe and frequent and was associated with lower QOL among the migraine patients.


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