scholarly journals Fathers in the Care of Children with Disabilities: An Exploratory Qualitative Study

Healthcare ◽  
2021 ◽  
Vol 10 (1) ◽  
pp. 14
Author(s):  
Brenda M. Uribe-Morales ◽  
Pablo A. Cantero-Garlito ◽  
Carmen Cipriano-Crespo
Keyword(s):  
Social Life ◽  
Leisure Time ◽  
Children With Disabilities ◽  
Working Hours ◽  
Well Being ◽  
Structured Interviews ◽  
Young Fathers ◽  
Axial Coding ◽  
Phenomenological Design

Objective: to explore the perception and experience of fathers of children with disabilities in caring for their children; to know their role and how these tasks impact their daily life, health and physical, mental and/or emotional well-being. Methodology: qualitative approach study with phenomenological design. The sample consisted of seven young fathers of underage children with various diagnoses. The data were collected through semi-structured interviews; the discourse analysis was carried out through open and axial coding processes. Three themes emerged from the results of the analysis: (1) shared responsibilities, (2) somewhat difficult to fit in, and (3) either you join or you split. Results: Fathers must readjust their work schedule, reduce their working hours, or give up their job altogether to take care of their children, as well as give up their social life. They lack time to enjoy their leisure time, to spend time with their partner, to take care of themselves. This involvement in caregiving generates an important occupational imbalance that has repercussions above all on their mental health. Conclusions: The sharing of caregiving tasks also impacts significantly on parents’ lives, it also takes away time and opportunities, and sometimes health and quality of life.

scholarly journals Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region

2020 ◽  
Vol 17 (8) ◽  
pp. 2920 ◽  
Author(s):  
Pablo A. Cantero-Garlito ◽  
Pedro Moruno-Miralles ◽  
Juan Antonio Flores-Martos
Keyword(s):  
Rural Areas ◽  
Children With Disabilities ◽  
Daily Life ◽  
Comparative Method ◽  
Well Being ◽  
Subjective Assessment ◽  
Structured Interviews ◽  
Constant Comparative Method ◽  
Phenomenological Design ◽  
Spanish Region

The purpose of this research is to describe how the mothers of children with disabilities in rural areas of Extremadura perceive care tasks and the subjective impact that these tasks have on their daily life and health, as well as the subjective assessment that these mothers make of the benefits and services of the Spanish welfare policy. An interpretative paradigm was selected, using a qualitative approach and a phenomenological design. Twelve mothers were included. Data were collected through semi-structured interviews. A discourse analysis of the narrative information was performed using open, axial, and selective coding processes and the constant comparative method. Three topics have been extracted from the findings of the analysis: (1) extensive care responsibilities, (2) impacts upon well-being and daily life, and (3) resources that “barely” help. The care tasks performed by mothers of children with disabilities in rural areas have an enormous impact on their daily life and health. This involvement in caregiving generates a significant occupational imbalance which has an impact on their mental health, and which causes economic and social problems.

scholarly journals Perceptions of hospital admission in patients with cystic fibrosis

2013 ◽  
Vol 2 (3) ◽  
pp. 54 ◽  
Author(s):  
Merel Visse ◽  
Tineke Abma ◽  
Hetty Van den Oever ◽  
Yvonne Prins ◽  
Vincent Gulmans
Keyword(s):  
Cystic Fibrosis ◽  
Hospital Admission ◽  
Social Life ◽  
Well Being ◽  
Human Beings ◽  
Intravenous Injections ◽  
Societal Context ◽  
Normative Expectations ◽  
The Impact

Aims and objectives: This paper is a report of a study of experiences of people with Cystic Fibrosis (CF) with their hospital admission. It evaluates how they perceive their treatment and care and the impact on their social life (school or work). Background: In The Netherlands, people with CF are hospitalized in seven CF centers. In general, hospitalization may raise several challenges concerning the patient’s psychosocial well-being, before, during and after the admission. The admission of people with CF is complicated, because of segregated treatment and care that aims to prevent hospital-based cross-infection. Design: This article reports on a qualitative study. Methods: Data were collected during 2009 and 2010. Nineteen people with CF admitted for more than 5 days in one of the seven Dutch CF-centres participated. Results and conclusions: The findings are organized into five contexts with subthemes: Before admission & Arrival (1); Treatment & Care (2); Room & Stay (3); Discharge (4); Social & Societal context (5). The findings show that patients express a need for enhancing the quality of some treatments, like intravenous injections and patients express normative expectations of professionals that directly relate to their psychosocial well-being, e.g. they want to be ‘seen’ and treated as human beings and not solely as patients. They desire segregation policies to be consistent, whilst simultaneously they prefer flexible segregation guidelines. In general, respondents are satisfied with hospital facilities. The study reports on challenges concerning continuation of school and work during the admission. The paper is relevant to every hospital where people are being nursed in isolation.

scholarly journals Health-related quality of life among 13–14 year old adolescents with overweight - a mixed methods approach

2019 ◽  
Author(s):  
Turid Kristin Bigum Sundar ◽  
Kirsti Riiser ◽  
Milada Småstuen ◽  
Randi Opheim ◽  
Knut Løndal ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Well Being ◽  
Reference Population ◽  
Health Related Quality ◽  
Structured Interviews ◽  
Post Intervention ◽  
Related Quality ◽  
Health Related

Abstract BackgroundOverweight and obesity are public concerns with risk of adverse health outcomes. Health-related quality of life (HRQoL) is lower in adolescents than children in general. An increase in body mass index (BMI) is associated with a decrease in HRQoL. The purpose of this study was to measure and explore the HRQoL among adolescents with overweight or obesity who had participated in an intervention study with the aim of increasing PA, reducing BMI and promoting HRQoL.Methods Mixed methods, with a convergent design, were used to investigate how different methodological approaches could expand our understanding of the adolescents’ HRQoL. Quantitative post-intervention data on HRQoL were collected among the 84 intervention participants, aged 13–14 years, using the KIDSCREEN 52 questionnaire. The data were compared with a Norwegian reference population of 244 individuals, and analysed using a non-parametric Mann-Whitney test. Qualitative semi-structured interviews were conducted with 21 adolescents from the intervention. A directed approach to content analysis was adopted, using the ten sub-scales from KIDSCREEN 52.ResultsHRQoL in the intervention sample was significantly reduced on the sub-scale of physical well-being compared to the reference population. The reference population scored significantly lower than the intervention sample on the sub-scale of parent relation and home life. No significant differences were found on the other sub-scales. The qualitative data supported the quantitative findings on the sub-scale of physical well-being, but showed that perceptions of fitness, energy level or health could vary. Regarding parent relations, the interviewees extended this to include relationships to other family members as equally important. Most of the interviewees expressed a negative view of their bodies, but not their clothing or accessories. This may explain why no statistically significant differences were found on these aspects in the results from the KIDSCREEN questionnaire. ConclusionThe use of the KIDSCREEN 52 instrument gave important indications about the adolescents’ HRQoL. Combining methods enabled a comprehensive approach to research on HRQoL, indicating better ways of providing help. More research using the benefits of mixed methods approaches is needed to further elucidate these findings.

scholarly journals Vocational guidance and assistance system for the employment of persons with disabilities and persons with disabilities within the framework of the international movement “Abilimpix”

2021 ◽  
Vol 24 (2) ◽  
pp. 5-9
Author(s):  
Tatyana N. Ananyeva ◽  
Galina I. Ilyukhina ◽  
Yulia V. Sazonova
Keyword(s):  
Social Life ◽  
People With Disabilities ◽  
Modern Society ◽  
Well Being ◽  
The State ◽  
Persons With Disabilities ◽  
Institutional Conditions ◽  
Professional Activities ◽  
Health And Well Being

Human health and well-being largely depend on a sufficient standard of living, educational opportunities and participation in social and social life, and successful professional activities. It should be recognized that in the surrounding society it is in these areas of life that people with disabilities and disabilities are especially disadvantaged, but not neglected by society and the state. Currently, in the Russian Federation, the State programme Accessible Environment is being implemented to support and assist persons with disabilities and disabilities, with the aim of creating legal, economic and institutional conditions conducive to the integration of persons with disabilities into society and improving their quality of life. The programme contains three subprogrammes that are effectively implemented in modern society, namely: (1) Ensuring the accessibility of priority facilities and services in priority areas of life of persons with disabilities and other mobile populations; (2) Improvement of the system of comprehensive rehabilitation and habilitation of persons with disabilities; (3) Improvement of the state system of medical and social expertise. The organizers of the Abilimpix social movement were able to demonstrate to people with disabilities their individual capabilities and prospects for accessibility to all types, forms and means of obtaining knowledge and professional skills, their effective application in practice.

scholarly journals Quality of life in patients with mild acute brain injury and their carers’ needs in Greece

2021 ◽  
Vol 9 (1) ◽  
pp. 39
Author(s):  
Evgenia Stasinopoulou ◽  
Margarita Giannakopoulou ◽  
Georgios Fildisis ◽  
Maria Kalafati ◽  
Chryssoula Leomonidou
Keyword(s):  
Quality Of Life ◽  
Brain Injury ◽  
Social Life ◽  
Well Being ◽  
Acute Brain Injury ◽  
Support Network ◽  
Family Needs ◽  
Rehabilitation Centers

Background: Investigating quality of life (QoL) is of crucial importance for the scientific community as it could function not only as an indicator of prognosis and post-traumatic clinical and psychological changes in patients who have suffered from acute brain injury (ABI), but also as an indicator of the effectiveness of their treatment and social rehabilitation. In addition, it can highlight changes in the carer’s health, social life and well-being. This study examined the QoL of patients following ABI and the needs of their carers.Material and methodology: This study was conducted in patients suffering from ABI, who were admitted to the General Hospital of Attica “KAT” and to the National Rehabilitation Center and on their carers. Data collection including demographics and Quality of Life After Brain Injury Questionnaire (QOLIBRI) and the Family Needs Questionnaire (FNQ) was performed during patients’ rehabilitation, while six months after release, a follow-up survey was conducted using the same questionnaires. Statistical analysis of data was performed using SPSS.Results: We analysed 50 patients with mild ABI (GCS ≥ of 13/15) during rehabilitation and six months after release and found that their QoL improves and is positively related to improvement of health status (i.e. in terms of thinking ability, QoL improves from r = 2.33, p < .01 to r = 3.37, p < .001). We also found that “Age” has the greatest impact on the patient’s progress for recovery and the general QoL after ABI (r = -0.423, p < .01). In addition, it was found that carers of patients with ABI are confronted with the burden of care, while they record both fulfilled and unmet needs regarding their individual needs (i.e. only for 30% of the sample the need for help in preparing them for the worst is met).Conclusions: Our study confirms previous findings that underline that ABI has a major impact on QoL of both patients and their carers providing them with long-term daily care. Although it has been found that over time there is an improvement in the QoL of patients with ABI, the absence of an official support network for carers from public health system, hospitals and rehabilitation centers may adversely affect the QoL of patients and their carers. Therefore, more structured, long-term family-wide monitoring and support is needed, focusing on identifying those at risk of social isolation and incomplete social networking.

A General Review of the Conceptual Dimensions of Quality of Leisure, Tourism, and Sports with a Particular Focus on Iran

2003 ◽  
Vol 2 (2) ◽  
pp. 189-206 ◽  
Author(s):  
Mohammad Taghi Sheykhi
Keyword(s):  
Quality Of Life ◽  
Third World ◽  
Leisure Time ◽  
Working Hours ◽  
Qualitative Change ◽  
Urban Life ◽  
Industrial Countries ◽  
The Third ◽  
The Third World

AbstractThe paper explores how quality of life is influenced by leisure, tourism, and sports. While these three concepts are counted as the cultural needs of the current industrial and especially urban life, they are not well-provided in many parts of the Third World. While working hours are shortened in the industrial world, followed by provision of leisure and tourism, leisure opportunities are less prevalent in the developing world including many parts of Asia. It should be kept in mind that changes in the quantitative aspects of such concepts lead to qualitative change in any society. This trinity, which also leads to modernization and development, acts as an economic multiplier as well. Today, while the industrial countries invest on employment, they simultaneously do the same on leisure time and sports. Under the overall conditions, the developing countries, including Iran, have yet a long way to go.

Extra care housing: exploring motivations, expectations and perceptions

2020 ◽  
Vol 23 (1) ◽  
pp. 15-26
Author(s):  
Michael James Buckland ◽  
Anthea Tinker
Keyword(s):  
Social Life ◽  
Housing Association ◽  
Small Sample Size ◽  
Well Being ◽  
Small Sample ◽  
Structured Interviews ◽  
Content Type ◽  
High Expectations ◽  
Health And Social Care ◽  
Extra Care Housing

Purpose The purpose of this paper is to explore and compare the motivations and expectations that older people have when choosing to move into either a private or housing association (HA) extra care housing (ECH) scheme, and any effects this had on its residents. Design/methodology/approach This qualitative study is based on findings from four HA schemes in Tower Hamlets, London, and one private scheme in Warwickshire. Eight semi-structured interviews were conducted with five women and three men of varying backgrounds, from schemes managed by different associations and companies. Interview transcripts were coded and analysed thematically. Findings All residents moved into ECH in response to deteriorating health. However, almost all residents had felt obliged to move by others, generally their children. Few residents had any expectations of ECH on arrival, but many developed high expectations of an increased sense of independence and security and of an improved social life. ECH appeared to be beneficial for residents’ health and well-being. Research limitations/implications The inability to recruit an equal number of people from HA and private scheme, alongside the small sample size, may compromise the external validity of any conclusions drawn from any comparisons. Practical implications This research identifies a lack of knowledge about ECH among the general population and offers insight into areas of poor management within ECH schemes which could be improved. Social implications Inadequacies in the ECH model could be attributed to failures in the current health and social care system. Differences between expectations and perceptions of HA vs private schemes should be acknowledged and responded to. Originality/value This is a rare example of research exploring the relationships between ECH residents’ motivations and expectations (Hillcoat-Nallétamby and Sardani, 2019), and between those in HA vs private schemes.

scholarly journals The impact of pregnancy on women’s oral health-related quality of life: a qualitative investigation

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Omid Fakheran ◽  
Mahmoud Keyvanara ◽  
Zahra Saied-Moallemi ◽  
Abbasali Khademi
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Pregnant Women ◽  
Social Life ◽  
Well Being ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Abstract Background Complex psychological and physiological changes occur in women’s body during pregnancy. These changes affect both oral health status and oral health-related quality of life (OHRQoL). In almost all of the previous cross-sectional design studies on pregnant women, generic OHRQoL instruments have been used to measure OHRQoL. While such instruments may be reliable, they may not be appropriate to evaluate the OHRQoL in special populations like pregnant women. The purpose of this study was to investigate the self-perceived factors affecting the OHRQoL among pregnant women. Methods In this qualitative descriptive study, twenty- seven pregnant women were recruited from four healthcare centers located in Isfahan city, Iran. The interpretative phenomenological analysis was used to collect and analyze the data. Four criteria of credibility, dependability, transferability, and confirmability were implemented through established procedures to confirm the study rigor. Results Three major themes and six sub-themes capturing the impacts of pregnancy on women’s OHRQoL were identified. They covered all areas of life, including daily life, psychological well-being, social life, physical impact, and also barriers to utilization of dental care services. Some new domains such as “dentists’ refusal to treat pregnant women”, “negative feelings about pregnancy” and “concerns about fetal health” were found as important factors which could influence the OHRQoL during pregnancy. Conclusion The findings help to better understand the oral health issues impacting women during pregnancy and to achieve person-centered care and improved oral health outcomes in pregnant women. The conceptual framework created based on the results of this study may help health care workers and policy makers for improving the health of pregnant women.

scholarly journals Green Infrastructures in the Peri-Urban Landscape: Exploring Local Perception of Well-Being through ‘Go-Alongs’ and ‘Semi-Structured Interviews’

2020 ◽  
Vol 12 (17) ◽  
pp. 6836
Author(s):  
Rocío Santo-Tomás Muro ◽  
Carlota Sáenz de Tejada Granados ◽  
Eva J. Rodríguez Romero
Keyword(s):  
Urban Areas ◽  
Urban Landscape ◽  
Well Being ◽  
Full Potential ◽  
Structured Interviews ◽  
Local Perception ◽  
Relevant Role ◽  
Environmental Inequalities

Providing conditions for health and well-being, especially for those most exposed to social and environmental inequalities, is a precondition for sustainable development. Green infrastructures in peri-urban areas have the potential to improve the quality of life of locals by fostering healthy practices, providing views, or bringing nature closer to the city. This work explores the local perception of well-being within urban green infrastructures (UGI) in the peri-urban fringe of Madrid (Spain) through a combination of qualitative methods: “go-alongs” and “semi-structured static interviews”. The grounded-theory based codification of the data using NVivo software and their subsequent analysis results in the identification of social, natural, and perceptual elements that prove to play a relevant role in locals’ perception of well-being. Among these, connectivity with other green spaces, panoramic views and place-based memories are aspects that seem to make UGI serve the community at its full potential, including perceived physical and psychological well-being. We identify in each case study both positive characteristics of UGI and dysfunctional aspects and areas of opportunity. Lastly, a methodological, geographical, and theoretical discussion is made on the relevance of the case studies and pertinence of the two interview methods as valuable tools for analysis and intervention in the peri-urban landscape.

‘Necessity is Neither Condemned nor Praised’: Social Workers’ Meanings of Guardianship for Disabled People

2020 ◽  
Author(s):  
R Holler ◽  
S Werner
Keyword(s):  
Social Workers ◽  
Well Being ◽  
Third Parties ◽  
Individual Freedom ◽  
Disabled People ◽  
Structured Interviews ◽  
Persons With Disabilities ◽  
Guardianship Law ◽  
Current Reform

Abstract Throughout the years, disabled people, especially those with intellectual and mental disabilities, have frequently been appointed authorised guardians. Having been criticised for restricting individual freedom and autonomy and in line with the 2006 UN Convention on the Rights of Persons with Disabilities, a 2016 reform in Israel's Legal Capacity and Guardianship Law called for restricting the use of guardianship and preferring less restrictive alternatives, specifically supported decision making (SDM). The success of this reform rests largely on social workers. This study examined the meanings social worker attach to guardianship and SDM. In-depth semi-structured interviews were conducted with twenty-seven Israeli social workers. The findings showed that whilst they acknowledged the shortcomings of guardianship, they nevertheless perceived it to be vital. They provided three justifications for this view: guardianship as a safeguarding practice, guardianship as promoting individual well-being and guardianship in the service of third parties. These findings are discussed in terms of their meaning for guardianship as a risk-aversive practice designed to promote service users’ well-being and quality of life and in terms of the role played by third parties in bringing SDM into force. Recommended steps for moving the current reform in guardianship from paper to practice are highlighted.

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