scholarly journals Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region

Author(s):  
Pablo A. Cantero-Garlito ◽  
Pedro Moruno-Miralles ◽  
Juan Antonio Flores-Martos

The purpose of this research is to describe how the mothers of children with disabilities in rural areas of Extremadura perceive care tasks and the subjective impact that these tasks have on their daily life and health, as well as the subjective assessment that these mothers make of the benefits and services of the Spanish welfare policy. An interpretative paradigm was selected, using a qualitative approach and a phenomenological design. Twelve mothers were included. Data were collected through semi-structured interviews. A discourse analysis of the narrative information was performed using open, axial, and selective coding processes and the constant comparative method. Three topics have been extracted from the findings of the analysis: (1) extensive care responsibilities, (2) impacts upon well-being and daily life, and (3) resources that “barely” help. The care tasks performed by mothers of children with disabilities in rural areas have an enormous impact on their daily life and health. This involvement in caregiving generates a significant occupational imbalance which has an impact on their mental health, and which causes economic and social problems.

2020 ◽  
Vol 19 ◽  
pp. 160940692094760
Author(s):  
Pablo A. Cantero-Garlito ◽  
Juan Antonio Flores-Martos ◽  
Pedro Moruno-Miralles

The general objective of this study is to describe and analyze the meanings that participants gave to the experience related to maternal caregiving activities of children with disabilities in the rural context and their impact on daily life and health. In order to achieve this general objective, the following specific objectives were established: (1) To describe the meanings given to experiences related to caregiving activities of children with disabilities; (2) To analyze the impact on daily life and health that these mothers attribute to those activities; (3) To describe how they experience the support provided by the social and healthcare system in rural areas. An interpretative paradigm was selected, using a qualitative approach and a phenomenological design. Twelve mothers were included. Data were collected through semi-structured interviews. A discourse analysis of the narrative information was performed using open, axial, and selective coding processes and the constant comparative method.


Healthcare ◽  
2021 ◽  
Vol 10 (1) ◽  
pp. 14
Author(s):  
Brenda M. Uribe-Morales ◽  
Pablo A. Cantero-Garlito ◽  
Carmen Cipriano-Crespo

Objective: to explore the perception and experience of fathers of children with disabilities in caring for their children; to know their role and how these tasks impact their daily life, health and physical, mental and/or emotional well-being. Methodology: qualitative approach study with phenomenological design. The sample consisted of seven young fathers of underage children with various diagnoses. The data were collected through semi-structured interviews; the discourse analysis was carried out through open and axial coding processes. Three themes emerged from the results of the analysis: (1) shared responsibilities, (2) somewhat difficult to fit in, and (3) either you join or you split. Results: Fathers must readjust their work schedule, reduce their working hours, or give up their job altogether to take care of their children, as well as give up their social life. They lack time to enjoy their leisure time, to spend time with their partner, to take care of themselves. This involvement in caregiving generates an important occupational imbalance that has repercussions above all on their mental health. Conclusions: The sharing of caregiving tasks also impacts significantly on parents’ lives, it also takes away time and opportunities, and sometimes health and quality of life.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 608-608
Author(s):  
Isabella Bouklas ◽  
Giancarlo Pasquini ◽  
Renee Gilbert ◽  
Cindy Bergeman ◽  
Stacey Scott

Abstract Leading theories of adult development suggest age-related changes in one’s life perspective and changes in one’s priorities are reflected in daily behavior. The present study explored how older adults understand their current lives through a qualitative study of midwestern Americans. Twenty-four participants (Mage= 69.53 years; age range=63-78 years) from the Notre Dame Study of Health & Well-Being (Whitehead & Bergeman, 2014) completed semi-structured interviews in which they were asked about turning points across their lives. Inductive analysis using the constant comparative method (Maykut & Morehouse, 1994) resulted in 10 life-domains based on common descriptions across participants. These domains represented the ways in which participants understood their identities over the course of their lives, as well as their organization and use of time and space in daily life. Participants’ descriptions of both general life outlook and daily life informed one another, revealing the dialectical relationship between micro-level behaviors and macro-level attitudes.


2021 ◽  
pp. 1-21
Author(s):  
Payge Lindow ◽  
Irene H. Yen ◽  
Mingyu Xiao ◽  
Cindy W. Leung

ABSTRACT Objective: Using an adaption of the Photovoice method, this study explored how food insecurity affected parents’ ability to provide food for their family, their strategies for managing household food insecurity, and the impact of food insecurity on their well-being. Design: Parents submitted photos around their families’ experiences with food insecurity. Afterwards, they completed in-depth, semi-structured interviews about their photos. The interviews were transcribed and analyzed for thematic content using the constant comparative method. Setting: San Francisco Bay Area, California, USA. Subjects: 17 parents (14 mothers and 3 fathers) were recruited from a broader qualitative study on understanding the experiences of food insecurity in low-income families. Results: Four themes were identified from the parents’ photos and interviews. First, parents described multiple aspects of their food environment that promoted unhealthy eating behaviors. Second, parents shared strategies they employed to acquire food with limited resources. Third, parents expressed feelings of shame, guilt, and distress resulting from their experience of food insecurity. And finally, parents described treating their children to special foods to cultivate a sense of normalcy. Conclusions: Parents highlighted the external contributors and internal struggles of their experiences of food insecurity. Additional research to understand the experiences of the food-insecure families may help to improve nutrition interventions targeting this structurally vulnerable population.


2012 ◽  
Vol 21 (3) ◽  
pp. 178-185 ◽  
Author(s):  
Mary L. Nolan ◽  
Victoria Mason ◽  
Sarah Snow ◽  
Wendy Messenger ◽  
Jonathon Catling ◽  
...  

This study explored how friendships made at antenatal classes preserve new mothers’ well-being, postnatally. Eight women from the United Kingdom who had attended antenatal classes in the third trimester were interviewed following the birth of their first baby. Transcripts were analyzed using a constant comparative method. Findings suggest that friendships made at antenatal classes are not only unique but also support women’s mental health and enhance self-efficacy because the women give and gain reassurance that their babies are developing normally. Such friendships may reduce demands on overstretched social and health-care services. Childbirth educators, midwives, and nurses can be encouraged to capitalize on the opportunity provided by antenatal classes to facilitate the formation of friendships that can help mothers to find “a new equilibrium.”


Author(s):  
Leyla Alilu ◽  
Vahid Zamanzadeh ◽  
Leila Valizadeh ◽  
Hosein Habibzadeh ◽  
Mark Gillespie

ABSTRACT Objective: this study explores the process of the development of an intention to leave bedside nursing. Method: the process was studied from the perspective of 21 nurses using the grounded theory method. Data were collected using semi-structured interviews and the constant comparative method of Corbin and Strauss was used for data analysis. Results: according to the participants, the two main categories, "social image of nursing", and "culture and structure of the bedside", were the contextual factors that influence why nurses are leaving bedside care provision. Disappointment with a perceived lack of progress or improvement in the clinical experience formed primary psychosocial concerns for the participants. Competence and a process of self-control were steps taken by the participants. These, associated with interventional conditions produced the outcomes of the loss of professional commitment and desire to leave bedside nursing. "Failure to integrate personal expectations with organizational expectations: in search of escape" was the central category of the study that linked the categories together. Conclusion: the findings of this study provide useful information about the needs of nurses for overcoming the intention to leave bedside care. The identification of this process can help in recognizing emerging problems and providing solutions for them.


2021 ◽  
Author(s):  
◽  
Anastasiia Gorlova

This case study of the cultural identity of bilingual adults aims to discover the changes in the self-identification of sequential Russian-English bilingual adults that occur as a result of the immersion in the second language and culture. The study strives to answer the question of the change in self-identification of bilingual adults and the way they perceive those changes as well as the role that language plays in the transformation of identity. The participants of the study are Russian-born graduate students pursuing their graduate studies at the Universities in the United States. The data for this qualitative study were gathered through oral semi-structured interviews and samples of participants' writing and analyzed using the constant comparative method. The research findings show that the participants of the study are situated on a various levels of the construction of hybrid identities. Among the factors that influenced that transformation of identity, the most were the loss of network and connections and the differences between American and Russian cultures. Additionally, language as a factor in the change of self-identification affects the identity when individuals temporarily lose the ability to communicate and then learn new communication strategies that involve a system of both languages based on the principles of efficient communication.


Author(s):  
Francisco José García-Sánchez ◽  
Vicente Martínez-Vizcaíno ◽  
Beatriz Rodríguez-Martín

Background: Although the addition of patients in the process of shared decision-making can improve their recovery, there is a lack of knowledge about patients’ and caregivers’ perceptions on the management of pressure ulcers at home. Objectives: To explore the conceptualisations of patients with pressure ulcers and their caregivers on the barriers and facilitators for their involvement in home care and in the process of shared decision-making regarding the care provided. Methods: A qualitative study based on grounded theory in a theoretical sample of 10 patients with pressure ulcers and 15 main caregivers from the health district of Puertollano (Spain). The data were based on semi-structured interviews, analysed using a coding process and the constant comparative method. Results: According to the participants, personal motivation and the involvement of primary care professionals facilitated their participation in the process of shared decision-making and generated feelings of positivity. In contrast, older age, having disabling pathologies, a low educational level or health paternalism were perceived as barriers for their involvement. Conclusions: A non-paternalistic care model and personal motivation facilitate the process of shared decision-making in the care of people with pressure ulcers. Further studies are required to deepen the understanding of this phenomenon and examine the barriers and facilitators for the involvement of patients and caregivers in the management of these injuries in other contexts.


2020 ◽  
Vol 7 (4) ◽  
pp. 467-475
Author(s):  
S.L.S. Houwen-van Opstal ◽  
Y.M.E.M. van den Elzen ◽  
M. Jansen ◽  
M.A.A.P. Willemsen ◽  
E.H.C. Cup ◽  
...  

Background: To retard shortening of finger flexors in patients with Duchenne muscular dystrophy (DMD), hand orthoses are prescribed. However, many patients do not wear the orthoses regularly. To optimize orthotic interventions, we need insight into the factors influencing compliance. Objective: To evaluate the compliance regarding hand orthoses in an adult DMD population and to explore experiences and perceptions of DMD patients wearing orthoses, and of their caregivers. Methods: Mixed methods observational study, combining quantitative and qualitative data from medical charts combined with qualitative semi-structured interviews using a constant comparative method and a short validated questionnaire (D-QUEST). Results: 65 medical charts were analyzed. 48 patients were assessed as needing hand orthoses, of whom 37.5 % were compliant. Qualitative data analyses revealed (1) motivation: preservation of hand function; (2) barriers: discomfort and impediments; (3) facilitators: good fit and personalized wearing schedule; (4) fitting process: satisfactory, but patients do not readily seek help when barriers appear. Conclusions: Patients are motivated to wear hand orthoses, but often discontinue use because of orthosis-and disease-specific barriers. The identification of these barriers leads to practical and feasible recommendations concerning the orthoses and the fitting process, such as less rigid material, preservation of some function while wearing the orthoses, and fixed evaluation points. The findings were confirmed by the D-QUEST.


Author(s):  
Hsiaowei Cristina Chang ◽  
Resa Marie Kelly ◽  
Ellen P. Metzger

This qualitative study was focused on exploring how in-service teachers' who were attending a three-day “Educating for Sustainability” workshop made sense of sustainability. Another goal of this study was to examine teachers' perceptions of the portrayal of the three dimensions of sustainability (environment, economy and social equity) in short movies that served as “real world” exemplars of sustainability that were freely available online through YouTube or other websites. Data was collected largely through individual semi-structured interviews, but also through questionnaires and written and drawn documentation. The findings, obtained through the constant-comparative method of coding, indicated that teachers' spontaneous descriptions of sustainability emphasized the environmental and economic dimensions of sustainability, but overlooked the equity dimension of sustainability. The videos helped teachers incorporate the 3E's into their sustainability discussions when all three dimensions were addressed, but when the social equity dimension was missing, then it tended to go unnoticed.


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